My son's neurologist started him on one teaspoon a day. We buy this: http://www.gnc.com/product/index.jsp?productId=3370405 . My son weighs about 55 pounds, and he takes one teaspoon in the morning with a cocktail...we mix in the Carnitor liquid that his doctor also prescribed at one teaspoon per day...along with a flavored beverage such as fruit punch or orange flavored soda. He takes his deflazacort (only 6 mg) at the same time. The sales person at GNC told me that I shouldn't mix the creatine with apple juice as it can cause heartburn...or at least that was his personal experience.
Thank you .My neurologist had no clue when I asked him about this supplement.I am really greatfull to u.do we need do any special blood test to monitor the level of creatine.and can u also tell me how did it help u r son.
Hi, My son also takes the Creatine. We give him a one half of a teaspoon for breakfast and one at night actually it is 2mls. I am not really sure on what it does but I give this to him with his Deflazacort in the morning. I mix the creatine with Soy Light Chocolate milk and he doesn't have a clue. I buy Pro Performance Creatine Monohydrate unflavored powder and I bought the 2.2lb (35.2oz) 1000G. I brought it with me to CHOP to show the docs to make sure it was right. I hope I helped you. Dana
My doctor prescribed the carnitor at the same time as the creatine, and I believe both were in response to Aaron's complaints of leg pain. He rarely complains of the pain anymore so I suspect that one or both (the creatine and/or the Carnitor) is working. My gut feeling is that it isn't hurting...so we try it. Same as with the use of Deflazacort...we *think* it is working, but who can be sure how an individual would've progressed if the other course had been taken. All of our medications/supplements are choices made on hope. :) He tends to have blood work done about once a year to monitor overall...that is the same frequency that he'd been on with the Deflazacort alone. Good luck!!