Do any of your wonderful boys complain about hurting all the time? Pain areas seem to move from the hips, to the arms, to the lower back, shoulders, legs? Can anyone relate? Can anyone tell me why? Kaleb had spinal surgery about 4 yrs ago and we wonder if the pain is because of the surgery - not that anything is wrong with the surgery but if it seems to be a common trait with our boys who have had the surgery. We are trying to get to the source but it seems a little hard because the pain is not in the same place each time we visit the physiatrist. Also, do any of your boys feel every crease in the bed even though the mattress is a Low-Airloss mattress? Do their tale bones hurt on a Low-Airloss? Can anyone relate? Can anyone help?
Thanks,
Mark

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I think the key to preventing bed sores and tail bone pain from happening is to turn and reposition your son every two hours if at all possible while he is lying in bed. Use pillows between the legs, arms, ect to make his lying position more comfortable. Also, it's important to give them pressure relief while he is sitting in the wheel chair, too. Use pillows to free float his heels off the bed to prevent heel decubs which can happen from pressure and friction/shearing ( i.e. pulling him up in bed). Check the skin on his sacrum daily for any signs of reness or breakdown. Notify report to his doctor any positive signs. There could be a decubiti ulcer developing. This will cause pain as well.

An air mattress is a good choice. Make sure there is air in the mattress since this device can deflate from time to time.

What about PT, massage therapy, range of motion exercises, or tylenol, to help reduce the pain to his hips and arms?
Thanks for your reply Tina. My concern is more the pain he feels in his body night and day. He has a dull pain in his shoulders,legs, arms, back everyday. Some days it is more sore in one of those areas than the others.

Tina said:
I think the key to preventing bed sores and tail bone pain from happening is to turn and reposition your son every two hours if at all possible while he is lying in bed. Use pillows between the legs, arms, ect to make his lying position more comfortable. Also, it's important to give them pressure relief while he is sitting in the wheel chair, too. Use pillows to free float his heels off the bed to prevent heel decubs which can happen from pressure and friction/shearing ( i.e. pulling him up in bed). Check the skin on his sacrum daily for any signs of reness or breakdown. Notify report to his doctor any positive signs. There could be a decubiti ulcer developing. This will cause pain as well.

An air mattress is a good choice. Make sure there is air in the mattress since this device can deflate from time to time.

What about PT, massage therapy, range of motion exercises, or tylenol, to help reduce the pain to his hips and arms?

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