Hey,
Does anyone know of a chewable or liquid form of C0Q10? I have to break open the caplet and mix with yogourt. Not even sure if it working the same? Any sugestions would be appreciated.
He can swallow 1200 mg of Vit. D (3 caplets)daily and has chewable Omega 3's and Multi. He is starting Deflazacourt in the new year which I hope is not a big pill either..

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Hi Marian,
Here is a link to the brand Dr.Wong recommends: http://www.epic4health.com/liq10syrup.html
My kids really like it. It is orangepinapple flavored. They also have double strength and chewable fomulas.
The deflazacourt we use is not very big, but because my little guy doesn't take a whole tab it seems to start desolving right away and he will only take it with milk because he says it doesn't taste as bad.
Good luck. We saw improvements right away with my boys on the deflazacort!
We use the liquid CoQ10 from Epic, too. Sam can swallow pills, but this is just so much easier.

Eileen DeLong said:
Hi Marian,
Here is a link to the brand Dr.Wong recommends: http://www.epic4health.com/liq10syrup.html
My kids really like it. It is orangepinapple flavored. They also have double strength and chewable fomulas.
The deflazacourt we use is not very big, but because my little guy doesn't take a whole tab it seems to start desolving right away and he will only take it with milk because he says it doesn't taste as bad.
Good luck. We saw improvements right away with my boys on the deflazacort!
Liquid from EOIC is very good. My sons levels went up after using it. I changed to the chewable this time and while my sons takes them, he does not like the taste on the chewable. I will switch back to liquid next time.
What is coenzyme q 10 good for???
The heart

Susana Arroyo said:
What is coenzyme q 10 good for???
Is it supposed to give more strength to the heart or just keep it healthier???
To Marian:
Vitafusion makes a peach-flavored gummy version of CoQ10. I've seen it sold at Target stores in the US; I don't know its availability elsewhere. The 6 mg deflazacort pill is very small. My son (almost 6) swallows it with a bite of pudding or other soft food.

To Susana:
Coenzyme Q10 is an antioxidant. Oxidation (= chemical reactions with oxygen) is a naturally occurring kind of damage to molecules, and it can happen to molecules inside cells, and that can help lead to health problems, which is why antioxidants are a hot topic. (If your cells don't work right, your body won't work right.)

Antioxidants are used to bind up loose oxygen in order to make the oxygen less available to react with other molecules. Oxidation has a role in DMD (it's one of several things happening to cause damage to the muscle cells). I don't know how much evidence there is yet of measuable results in DMD, but it's one those things where you figure: it's cheap, it's easy, and it doesn't cause any harm. So a lot of people use it, both for DMD & for general health.

CoQ10 is marketed for heart health, but I suspect whatever benefits it has aren't limited to the heart. It won't give more strength. It may help slow down damage.
Thank you Barbara

Barbara said:
To Marian:
Vitafusion makes a peach-flavored gummy version of CoQ10. I've seen it sold at Target stores in the US; I don't know its availability elsewhere. The 6 mg deflazacort pill is very small. My son (almost 6) swallows it with a bite of pudding or other soft food.

To Susana:
Coenzyme Q10 is an antioxidant. Oxidation (= chemical reactions with oxygen) is a naturally occurring kind of damage to molecules, and it can happen to molecules inside cells, and that can help lead to health problems, which is why antioxidants are a hot topic. (If your cells don't work right, your body won't work right.)

Antioxidants are used to bind up loose oxygen in order to make the oxygen less available to react with other molecules. Oxidation has a role in DMD (it's one of several things happening to cause damage to the muscle cells). I don't know how much evidence there is yet of measuable results in DMD, but it's one those things where you figure: it's cheap, it's easy, and it doesn't cause any harm. So a lot of people use it, both for DMD & for general health.

CoQ10 is marketed for heart health, but I suspect whatever benefits it has aren't limited to the heart. It won't give more strength. It may help slow down damage.
Thank you Eileen, Hugs! I can't wait for the Deflazacourt.

Eileen DeLong said:
Hi Marian,
Here is a link to the brand Dr.Wong recommends: http://www.epic4health.com/liq10syrup.html
My kids really like it. It is orangepinapple flavored. They also have double strength and chewable fomulas.
The deflazacourt we use is not very big, but because my little guy doesn't take a whole tab it seems to start desolving right away and he will only take it with milk because he says it doesn't taste as bad.
Good luck. We saw improvements right away with my boys on the deflazacort!
we used to get CoQ10 in a liquid form from T D Clark. In fact they had other supplements like argenine and l-carnetine in liquid form as well. We just give him tablets as he handles them really well now and just takes them with yoghurt. Also, James used to choke a lot and had very little gag reflex (not sure if this is common with other boys) so the liquid form was essential back then. The good thing about giving him tablets now is the higher dosage available.
Hi Marian,

I think you might be surprised when it comes to taking the Deflazacort. My son, Sam had the hardest time out of my 4 kids when it came to taking medicine of any kind, but he can swallow ANYTHING now including a giant 200 mg Co Q10 . We knew that starting the meds and supplements would be hard for him at first. He started Deflazacort at 5 and he has done great. Yogurt or applesauce are really helpful because it gives them something to swallow it with. Deflazacort is a flat tablet with a middle score mark on it. (Sam takes half.) I used to chop it into 6 tiny pieces but found that breaking it into only 2 pieces was better because it didn't taste as bad that way. Sam only complained about 3 days and now he doesn't care. He gets all his meds and supplements down in 2 bites of yogurt. We have found that taking meds is just like everything else with these DMD boys - it's tough in the beginning, but it gets easier. A friend with a much older DMD boy once told me that when you finally get to the hurdles that you see in your future they are not nearly as big as they seemed. She has been right so far for our family!

Good luck!
Stefanie
Thanks for the kind words.
YOur friend with the older DMD boy must be a brave woman to look at it that way. I have been trying to, so hard and I think I finally got it. SO thanks for posting. Hugs xoxo

Stefanie Killian said:
Hi Marian,

I think you might be surprised when it comes to taking the Deflazacort. My son, Sam had the hardest time out of my 4 kids when it came to taking medicine of any kind, but he can swallow ANYTHING now including a giant 200 mg Co Q10 . We knew that starting the meds and supplements would be hard for him at first. He started Deflazacort at 5 and he has done great. Yogurt or applesauce are really helpful because it gives them something to swallow it with. Deflazacort is a flat tablet with a middle score mark on it. (Sam takes half.) I used to chop it into 6 tiny pieces but found that breaking it into only 2 pieces was better because it didn't taste as bad that way. Sam only complained about 3 days and now he doesn't care. He gets all his meds and supplements down in 2 bites of yogurt. We have found that taking meds is just like everything else with these DMD boys - it's tough in the beginning, but it gets easier. A friend with a much older DMD boy once told me that when you finally get to the hurdles that you see in your future they are not nearly as big as they seemed. She has been right so far for our family!

Good luck!
Stefanie

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