We are a family that has a boy, Braedan with Duchenne. I am reaching out to all that are in the Ohio area..  Please contact me if you are in our area. I would love to talk to you.  E-mail me at thenegar2000@hotmail.com. I hope to hear from you soon!!!


Tammy Henegar

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What part of Ohio?  We're in Southeast Michigan.

That is close enough.  Do you have an e-mail address that you can give me?  I have set up a meeting for Duchenne parents and family, that I would like to extend and invite to in our area. The meeting is in Perrysburg, Ohio.

My e-mail is thenegar2000@hotmail.com if you would like to e-mail me first.  Thanks..and look forward to speaking with you.



I would like to invite you and your family to a parent meeting that has been offered to us to learn more on the latest research of Duchenne.   It is Next Thursday, at the The Hilton Garden at Levis Commons in Perrysburg.  6:30-8pm.

 Please advise if you would be interested.  Also, if you know of others as well, I would love for you to pass this along.




Tammy Henegar

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