hi

 

it seems that PTC didn't give any dates and planning for the compassionate treatment in naples

 

we don't have the result of the biopsy after more than one year

 

i think that we have to do something. Is their an ethical or audit commision in states we can ask to have a look on the procedure ptc has followed

 

iis there a lawyer among us?

 

best

 

 

francoise

 

 

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