HI

 

We can't accept the ptc and genzyme decision to stop the trial.

We have to ask , all of us, to postpone the decision

we need clear answers

 

- the results of the two biopsy

-the resuts of the blood test

-the opening of the blind test

 

-the results of the children who are on phase 2A and who seem to have good results

 

the procedure is not etical (stooping a trial without explanation), we can't bear this

 

we have to be certain that every thing has be done clearly (may be ask an external audit)

 

WE CAN 'T ACCEPT THAT OUR SON HAS BEEN TREATED AS MOUSES

 

best

 

françoise

 

 

 

 

 

 

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Please join the call at noon.
Sincerely,
Pat Furlong
i've planned to do it
best

françoise

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