Ataluren

Today I received a letter from California children services denying services for my son because he is in the trial Ataluren , they said he is no longer eligible to receive services from CCS because he is in the trial ,
Ataluren is working!!

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Permalink Reply by Shelly on March 1, 2016 at 9:41pm
I'm so sorry to hear about the letter you received. Sad that if one door is open for us .. Other will be closed.
But I am glad that you are on right track in the right hands.
Really good to hear that ataluren is working!
Blessings to your cute son!
Permalink Reply by Jay Griffin on March 2, 2016 at 1:11pm

Azucena,

I am glad that it is working... Can you provide details? 

Permalink Reply by Antonio Castro on September 18, 2017 at 10:19am

Hello Azucena, tell us more about Ataluren.

God Bless.

Antonio

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