Today I received a letter from California children services denying services for my son because he is in the trial Ataluren , they said he is no longer eligible to receive services from CCS because he is in the trial ,
Ataluren is working!!
I'm so sorry to hear about the letter you received. Sad that if one door is open for us .. Other will be closed.
But I am glad that you are on right track in the right hands.
Really good to hear that ataluren is working!
Blessings to your cute son!