Today I received a letter from California children services denying services for my son because he is in the trial Ataluren , they said he is no longer eligible to receive services from CCS because he is in the trial ,
Ataluren is working!!

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I'm so sorry to hear about the letter you received. Sad that if one door is open for us .. Other will be closed.
But I am glad that you are on right track in the right hands.
Really good to hear that ataluren is working!
Blessings to your cute son!


I am glad that it is working... Can you provide details? 

Hello Azucena, tell us more about Ataluren.

God Bless.


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