Right, this is probably the totally wrong place to post this but I've run out of ideas of what else to do.
As my baby boy's 1st birthday approaches I am becoming increasingly low. I worry so badly about his future. Does ANYONE have a child with deletions in the realm of 45 to 50 who DOESN'T have any sort of behavioural/ADHD/ASD/autism/learning disorder? Anyone got a smart, happy kid? Will my son have all of these things or a few or none at all?
Can anyone tell me ANYTHING that may make me feel as though life is worth living or that the future won't be so bad??
I'm very sorry to ask on here as I know everyone else has their troubles but I just don't know what else to do to feel better right now.
Seth is my only child and we found out about his DMD when he was 6 weeks old through newborn screening. So far he's been an 'early developer' and shows no clinical signs of muscle weakness at the moment. But I can't bear it any more.