anyone 20 years or older with DMD still walking?

im 20 years old and still walking yes i do have DMD...

i was just wondering is there anyone else my age still walking?

Views: 1579

▶ Reply to This

Replies to This Discussion

Permalink Reply by Bernardo A. Iriberri on August 4, 2016 at 3:23pm

Thank you very much for your answer Dakota. Very inspiring to read your comments.

Permalink Reply by Shannon Cooley on July 2, 2018 at 7:02am
  • My brother is 22 and can still walk with 3-7 deletion. He also broke his femur at 13. 
Permalink Reply by Sai Chand. Gurujala on July 4, 2018 at 7:24am

Hi Donna, How is your Son doing? Still on deflazacort?

Donna Taylor said:

Hi Dakota. My son turned 20 in April and is still walking. He has been taking deflazacort for 10 years. What type of mutation do you have? My son's is a deletion of 3-7.
Permalink Reply by Sai Chand. Gurujala on July 4, 2018 at 7:29am

Hi Donna, How is your Son doing? Still on deflazacort?

Donna Taylor said:

Hi Dakota. My son turned 20 in April and is still walking. He has been taking deflazacort for 10 years. What type of mutation do you have? My son's is a deletion of 3-7.

▶ Reply to Discussion

RSS

Need help using this community site? Visit Ning's Help Page.

Members

Events

Terms of Service

© 2018   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service