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Permalink Reply by Bernardo A. Iriberri on August 4, 2016 at 3:23pm

Thank you very much for your answer Dakota. Very inspiring to read your comments.

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Permalink Reply by Shannon Cooley on July 2, 2018 at 7:02am

• My brother is 22 and can still walk with 3-7 deletion. He also broke his femur at 13. 

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Permalink Reply by Sai Chand. Gurujala on July 4, 2018 at 7:24am

Hi Donna, How is your Son doing? Still on deflazacort?

Donna Taylor said:

Hi Dakota. My son turned 20 in April and is still walking. He has been taking deflazacort for 10 years. What type of mutation do you have? My son's is a deletion of 3-7.

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Permalink Reply by Sai Chand. Gurujala on July 4, 2018 at 7:29am

Hi Donna, How is your Son doing? Still on deflazacort?

Donna Taylor said:

Hi Dakota. My son turned 20 in April and is still walking. He has been taking deflazacort for 10 years. What type of mutation do you have? My son's is a deletion of 3-7.

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