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Sorry... I clicked too hard! Joshua is going to be taking part in the trial taking place in Calgary. I was curious to know if any other parents on this site have children were also.

http://clinicaltrials.gov/ct2/show/NCT01099761?term=DMD+Canada&...

http://www.checkorphan.org/grid/news/treatment/acceleron-pharma-ini...
All the best to Joshua on this - we are all rooting hard for him!
Unfortunately we're a bit far away from Calgary (just south of Regina), and Hayden has only been on steroids for a few weeks, and Cameron is too young to start. We are excited that trials are happening nearby though and are anxious to hear about your experiences
We probably are if they are still accepting in Sept at McMaster in Hamilton. ..... Josh has to be on steroids for a full year first to be able to participate.
Joshua has been on steroids for 4 years already. Do you have the link for registering? If not...

http://clinicaltrials.gov/ct2/show/NCT01099761?term=DMD+Canada&...
do you have contact info for this trial? are they done enrolling? will they enroll US children? thanks, jenn

Joshua's mom said:
Sorry... I clicked too hard! Joshua is going to be taking part in the trial taking place in Calgary. I was curious to know if any other parents on this site have children were also.

http://clinicaltrials.gov/ct2/show/NCT01099761?term=DMD+Canada&...

http://www.checkorphan.org/grid/news/treatment/acceleron-pharma-ini...
The first link I posted is the info and contacts. They are still enrolling. I don't know if they will enroll US children or not though, but it's worth a shot!
Joshua's mom: sorry I meant my Josh. lol. He started steroids last Sept so they can't enroll him till he's been on for a year.
Mybe I should change my name on here... there seems to be more and more Josh's popping up! lol. It would be nice if they could start after the 1 year mark. I don't know exactly when they start as of yet, but I've been told around your Josh's 1 year mark.

Naomi

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