There have been numerous transitions in my life, none of them easy, none of them without judgment. Ambulatory to Non-Ambulatory, Male to Female (and, in turn, Gay to Straight), Childhood to Adulthood, but the most challenging of all was when I went from Denial to Acceptance on the harsh reality of having Duchenne Muscular Dystrophy. I've been told, time and time again, that I'll be dead soon, first it was 15, 18, 21 and, now, 25. I've never found true love or anyone I wanted to spend the rest of my life with and I'm fine with that but losing another friend year after year to Duchenne, it never gets easier. I think maybe God is punishing me for something by forcing me to stay alive while I lose everyone and everything I've ever loved. If there was a God, really was a God, then why must I and other boys suffer for the sins of others? He's all loving, right? All powerful? All knowing? Then how can He leave me to suffer? I don't blame God, I just don't see a reason in believing that there's some greater purpose for me being on this earth. I don't want to live anymore but I still fight to stay alive for all my friends that died. The Government funds the super-rich, the lazy, the morally corrupt, but it feels the need to try and cut funds for those genuinely in need, as social welfare was intended. If I could work at a job, I would. I've never sinned in my life. Why should the evil be rewarded for their deeds?

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Dear Maria,

My heart goes out to you for your loss and all your pain. My 13 year old son also has Duchenne's and we too have experienced a great range of emotions. What has brought us comfort is having clear concrete answers to the very questions you are asking. Many people will have you believe there are no answers to your questions but that is not true, the bible clearly explains why God permits suffering and what he will do to end it and how we can cope with it in the mean time. Let me assure you that Duchenne's is not from God nor is it a punishment for sin - yours or anyone else's. This bible knowledge has given us tremendous peace and a strong hope for our son's future. There is so much I could say that I don't know where to begin so let me start with sending you a link to a website that will answer these questions then if you want to know more you can request more information through the website or feel free to ask me.


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