My heart goes out to you for your loss and all your pain. My 13 year old son also has Duchenne's and we too have experienced a great range of emotions. What has brought us comfort is having clear concrete answers to the very questions you are asking. Many people will have you believe there are no answers to your questions but that is not true, the bible clearly explains why God permits suffering and what he will do to end it and how we can cope with it in the mean time. Let me assure you that Duchenne's is not from God nor is it a punishment for sin - yours or anyone else's. This bible knowledge has given us tremendous peace and a strong hope for our son's future. There is so much I could say that I don't know where to begin so let me start with sending you a link to a website that will answer these questions then if you want to know more you can request more information through the website or feel free to ask me.