If you look on the right hand side there is a rotating message box that lists current PPMD events. When the Advocacy Conference appears (there is a picture of the Capitol Building), click that picture to take you to the page.
I live in Maine, so I don't think I would be of help.
The Advocacy Conference went well with almost 100 Advocates representing PPMD for DMD. There is still much that can be done to help from home. Please consider calling your Members' Washington, DC offices asking to speak with their person who works on health related issues. Tell them you would like their boss (Senator or Representative) to support or efforts, primarily the sign on letter to support a Clinical Outreach Program through the Health Services and Resources Administration, HRSA. This is a Programmatic Appropriations request to fund a program designed to decrease the time for diagnosis and better educate physicians and other education and healthcare professionals who see young children about DMD. For more information go to:
All families are urged to participate and support this important effort.
Thank you in advance for your help.