It's still 2008, at least for a few weeks, yet it isn't too early be thinking about the PPMD Legislative Conference. This year the Conference is early, February 8-10. Sure, the MD CARE Act was only recently reauthorized, but there are many reasons for families and friends to take time and visit Capitol Hill. Now is the time to begin looking at our schedules and begin making plans to travel to Washington, DC and put a face on DMD.
With many new Members of Congress the message will be very new to them and their staff. We have a golden opportunity to share our stories and experiences to garner support for our cause. We all have a compelling story that can lead a Member to see the value in helping us reach our goals. Constituents are the most effective people who influence Congress.
PPMD has made many inroads in obtaining federal funding, yet this isn't guaranteed. Without a regular presence in Washington other groups will move ahead. There are many worthy causes and we need to be there to raise awareness and let Congress know who we are and what we want for our loved ones. PPMD cannot afford to miss an opportunities to fund research.
The Legislative Agenda has not been set, yet be assured your participation is needed. I urge you to take time and be an Advocate for those who have DMD. We all are looking for ways to make a difference. Participating in the Legislative Conference is an effective way to have an impact on issues that are important to the DMD community.