I'm in Illinois, near Chicago. My IEP rep said what about adaptive PE, and I said no, I want to totally keep him away from gym class in it's entirety. I hear horror stories about gym teachers who think hey, he's still walking, there's nothing the matter with him... do 25 push ups, run around, etc. and that's even with an IEP in place. Can you explain adaptive PE to me? I'd just rather keep him away and maybe have him do speech therapy or stretches for physical therapy at the same time the other kids are running around.
I seriously never understood PE, even when I was a kid... what a silly thing to put in school.
Thanks all! I live near Aurora Illinois and got the invite for the next FACES meeting. I haven't been able to attend in the past because of scheduling conflicts but would love to attend this meeting. Hopefully my problems will be solved as I have a meeting tomorrow with the Director of Special Education in our area (Kendall County), and with Nicolas' teacher and Vice Principal. I spoke with Nicolas' teacher on Friday and she was more receptive. I was told by Nicolas on Thursday that he had to lift his chair and put on his desk. this was difficult for him. I met with her and she seemed to understand a bit more. I also told her that I could provide pamphlets and booklets for her as a teacher to learn a bit more about DMD, and to understand the limitations, and what is expected. I am not totally impressed with her, really wanted another 1st grade teacher that I already knew and knew would be more receptive, but at least she's hearing me, and wanted to talk with me.
We'll see how things go tomorrow. In a perfect world, first off there'd be no DMD, but in my world, I'd be able to stay home and home school Nicolas. Problem is we need 2 incomes for survival these days!!
I thank you all and will let you know outcome of meeting tomorrow. I'm hoping to get something in place! I already told Nicolas if he were to be asked to participate in gym, or long walks, or lifting chairs, etc. to just say NO, and if there's a problem, have the teacher call me. Trying to get him not to be embarrassed and take care of himself when I'm not there to protect him.