How old is your DMD son? Obviously you've got him on steroids, right? When did the diagnosis come down? Were there symptoms you noticed prior to diagnosis?
You seem up to date on a number of topics and I love your ability to think so positively. I just see the end today. Our son will be none in November and was just diagnosed last June. He hardly had any symptoms that would lead anyone to think DMD - no floppy baby, no trouble reaching milestones in sitting up and he walked by 16 months on his own. He walked before than, but holding on. His only major sign was that he seemed a little uncoordinated with catching a ball and ran slower than his peers. All I read is about the symptoms of DMD being obvious by age 4 or 5. And those diagnosed at that age live into their early 20s. Just how long do these children respond to the drugs aimed at slowing progression? You mention other treatments coming down the line - do you really think they will help? I mean a cure for me is