I guess I'll start this one.
I lost my 16 year old son to DMD March 31, 2007. It has been very hard, he is missed each and everyday. We are learning to live the "New Normal" but, we will never be the same. He was an amazing kid and just knowing him blessed our lives.
I have continued being a part of the PPMD family because... it's not over yet, there's still no cure and I know my son would never want us to give up.
The PPMD community has been a big part of the healing process. They have let me share my memories of my son and many of it's members have offered support when I needed it the most. I know it's very hard for some to even look at my postings, but for those who have and offered support, I thank you. My hope is that in some way I can give back by offering help and support to others as well. God Bless all of you.