I don't look to the MDA to find a cure for DMD, I look to them to help us with what we need in our daily lives (equiptment, camp, etc) and I do like our local clinic.
Same with me....and that's the problem. If the MDA was putting more towards research for a cure, we eventually wouldn't need these damn things.
Mindy, I am sure you will find many who are in agreement with you on your post. What sucks is the MDA is well known, so they get the most donations. This corporation just has too many paychecks to cut to all their employees who reside in the countless numbers of offices they have throughout the country...which they have to pay rent for as well.
I appreciate the MDA for paying for my sons boots, his scooter, his future power chair, the silly little $15 copay that i can afford, and all the other equipment he will need in the later stages of DMD...
I also despise the MDA for the very same thing, especially when they could be putting more towards research for all the disorders they support...
But, hey, if cures were found, the nations unemployment rate would grow...the MDA wouldn't want that.