This time of year, PPMD has many activities going on that help support the work that we do throughout the year and on an ongoing basis. It seems as school starts up in September, we kick into a busy time of year too.
With a constant flow of information in our monthly newsletters, a legislative agenda, four marathons (and registration deadlines), a holiday appeal, and now our Coach To Cure MD opportunity… when is enough, enough? When have we reached out to as many people as we can? And when does it become too much? It is a constant question that we ask ourselves.
My feeling is this… not everyone can donate a large sum of money to an organization to help it move forward. Not everyone has the time, resources, or energy to throw a fundraising event. Not everyone can run a marathon. But I believe that EVERYONE needs to do something. So the more opportunities that PPMD has going, the more likely we are going to find a fit for everyone and for everyone’s family to support.
PPMD is working on behalf of everyone’s son… not just for one boy or two boys, but for ALL of the boys. And ALL of the boys deserve as much energy, persistence, and support as we can put out there.
In today’s economy more than ever WE – the Duchenne community – are going to be the people who continue to drive research, to push treatments, and keep Duchenne on everyone’s radar screen. This is why I believe it is up to ALL of us to do as much as we can, both physically and financially to support the good work that is out there.
I hope that each of you reading this post will choose to support one of our efforts. Whether you register to run a marathon, or email your entire address book about Coach To Cure MD, or text the word CURE to 90999 to make a $5 donation– we need you to help us with these endeavors.
So really- when is enough, enough? I say it won’t be enough until the day there is a cure and we end Duchenne.
Coach to Cure MD
Run for Our Sons