This is soooooo awesome!!!! How exciting!! Persistence pays off=) Way to go Jacobs Mommom!!!! You rock!!! You are such a great example of dedication to all of the grandparents out there AND to us parents! I can't wait to see this show and if I know when it is being filmed would love to be there as well.
Way to go!!! this is exciting news. This is one of the many exciting ways to bring (more) awareness on DMD/BMD and MD in general. You be serprise how many people really are ignorant about the disease. Sometimes we do need to bring as much attention to it as they do with any other disease. I'm sure there are many suggestions of things that need to be brought up and discussing it with Pat is a good idea.
I wish I could be be there for the taping too, but with Tim in classes and his only caregiver, just can't....but do let us know if/when it is air and I can assure you that many of us will be there to support you all in some way of form.
I too am appreciative of your efforts and success. Thank You.
I only have one request ( if they are being accepted by Parent Project members ).
Please leave the audience and television viewers with the understanding how close we are to helping so many boys with a deletion in the "hot spot" areas, how PTC will make such a difference with 15% of them as well as the hope we have in the very near future that other drugs may help the remaining few.
Anotherwards, I don't want them leaving the program feeling sorry for me. "That poor mother." I want them leaving with the understanding that we need their help...we can make a difference with this generation of boys.... and here is how they can help.