I too am appreciative of your efforts and success. Thank You.
I only have one request ( if they are being accepted by Parent Project members ).
Please leave the audience and television viewers with the understanding how close we are to helping so many boys with a deletion in the "hot spot" areas, how PTC will make such a difference with 15% of them as well as the hope we have in the very near future that other drugs may help the remaining few.
Anotherwards, I don't want them leaving the program feeling sorry for me. "That poor mother." I want them leaving with the understanding that we need their help...we can make a difference with this generation of boys.... and here is how they can help.
I have a suggestion and sent it to you. I have somebody in mind and provided his email address for you . He is an incredible writer, a lobbyist in Washington D.C. and a dad of a Duchenne boy. He is very involved in Duchenne research and has a close relationship with Dr. Eric Hoffman who is feverishly working on developing clinical trials for exon skipping. Let me know if I can be of any other help.
Best of luck. The Duchenne community thanks you.
I just got done emailing the Dr. Phil show all of the information that they asked for along with pictures. Everyone please pray that everything went thru okay and that I get a call this week.
I wanted to give everyone an update so that everyone else can be on pins and needles with me:)
Here is the follow up email that I received after the initial phone call.
From: 'Dr Phil Intern 7'
Sent: Thu Sep 11 11:26
Subject: Fwd: Dr. Phil Show response to letter.
Dear Mrs. Doyle I received your email and am very interested in learning more about your situation. If you can email me back ASAP with the following questions answered that would be great. Please don't hesitate to go into detail......Also, the pictures are very important, so please send some ASAP...
1. Email me recent photos of you and anyone else involved in your story
2. Are you and the other parties (if applicable) willing to appear on the show?
Please send pictures as soon as possible, as we have some deadlines coming soon and would not want you to miss this opportunity! After I get the photos I'll contact you and let you know what the next step is. IT IS VERY IMPORTANT TO STRESS THAT ALL PARTIES INVOLVED MUST BE WILLING TO PARTICIPATE IN THE SHOW. Thanks so much and I look forward to speaking with you!
Best Regards and Thank You
"The Dr.Phil Show"
I sent her everything Sunday evening so she would have it on Monday. I sent her a follow up email yesterday morning asking her if she received everything because I would hate to think that it went thru when it didn't and still nothing.
Now I'm debating if I try calling her at the phone number that I found and posted on the site or do I wait it out?
My nerves are shot!!!!!!!!
In the meantime I'm still sending out letters and I'm still filling in requests for different shows.