Tags:
They want us??? I'm sitting here with my mouth open! What did they say? Terry Porcaro
Good Job!!!!!
Let us know when the show is scheduled. One thing that might be helpful is if you can mention about the pilot study they are conducting for newborn screening in Columbus, OH. That is how we found out about our son -- I have no family history and am not a carrier. People should learn that anyone can have a child with DMD and that newborn screening would be helpful.
We have to keep this up and keep this going! If all of us keep emailing every week and we can get some friends and family to send them as well I'm sure we'll get other shows interested.
Good Job!!!!!
Let us know when the show is scheduled. One thing that might be helpful is if you can mention about the pilot study they are conducting for newborn screening in Columbus, OH. That is how we found out about our son -- I have no family history and am not a carrier. People should learn that anyone can have a child with DMD and that newborn screening would be helpful.
© 2022 Created by PPMD.
Powered by
Badges | Report an Issue | Privacy Policy | Terms of Service