Hi there, my sons have a deletion of Exon 50 also. I also would love for them to be on the trial for Prosensa, but we are in NZ. I am looking into it though. Exon skipping should help our boys, its actually what keeps me going. I started a group on here called Exon 50 deletion.
Just realised your post is from 2008! Not sure you are even still on here. If so, how is your son now?