I saved my sons' cord blood with a company called viacord. I know it is somewhat of a new option being offered to new parents. At the last minute in the labor room I decided to sign up for it.
I have contacted viacord upon the diagnoses of my son having deletion of exon 13. They are not currently studying muscular dystrophy, but I am thinking that this cord blood could be used for research somewhere else.
Maybe they can work with the defective stem cells in the cord blood and figure out how to manipulate them into correcting the mutation.
Please when you are visiting with your doctors across the globe, mention this to them.
My son is 18 months old, he is asymptomatic at this point and I feel that I am in a race with time for a cure.

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I was wandering if anyone had done this. We did not do it for Wyatt but plan to do it for the next child. What is the procedure for banking the cord blood?

Jessica R.
After you deliver your baby the doctor takes the placenta and they freeze it and send it off to viacord. I think it also initially costs around $2000 and then there is an annual fee around $125.
We had our third child so we could bank her cord blood to hopefully save her brother in years to come. I would do it again and again. It is pricey, but it is a life insurance policy. Plus, if anything ever happens to her she has her own cord blood banked. Something like this should be subsidised by the governments as everyone should be able to do this for their kids.
Jessica said:
After you deliver your baby the doctor takes the placenta and they freeze it and send it off to viacord. I think it also initially costs around $2000 and then there is an annual fee around $125.

Actually, they draw blood out of the cord and take it away to be processed and frozen. The placenta is actually discarded. The blood drawn is the blood within the umbilical cord.
Dr. Jaque Tremblay is a Canadian researcher. Whenever I had questions regarding Joshua when he was a baby, I would e-mail him and he would respond right away. He would even speak to me on the phone. It's worth a try!

Naomi


Jacque P. Tremblay (Jacques-P.Tremblay [jacquesp.tremblay@crchul.ulaval.ca])
Sharyn Thompson said:
Jessica said:
After you deliver your baby the doctor takes the placenta and they freeze it and send it off to viacord. I think it also initially costs around $2000 and then there is an annual fee around $125.

Actually, they draw blood out of the cord and take it away to be processed and frozen. The placenta is actually discarded. The blood drawn is the blood within the umbilical cord.

Oh okay, I wasn't exactly sure of the specifics. When I decided to do it, I was already in labor so it is a bit of a blur the procedure. Did you also use viacord? Maybe a different company will research muscular dystrophy?
Jessica said:
Sharyn Thompson said:
Jessica said:
After you deliver your baby the doctor takes the placenta and they freeze it and send it off to viacord. I think it also initially costs around $2000 and then there is an annual fee around $125.

Actually, they draw blood out of the cord and take it away to be processed and frozen. The placenta is actually discarded. The blood drawn is the blood within the umbilical cord.

Oh okay, I wasn't exactly sure of the specifics. When I decided to do it, I was already in labor so it is a bit of a blur the procedure. Did you also use viacord? Maybe a different company will research muscular dystrophy?

I currently live in Singapore and we used a company called "Cordlife", but I banked mine to save for the future, not for research. Then again, we only banked my daughter's blood, not my son's (as he was born in Japan and I had no idea of cord blood banking back then). When the time comes, we can have our blood transported from Cordlife to anywhere in the world to be used in any treatment we want.

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