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Hello all, just an update on my son's status on the trial. We finally are going to Philly next week for the muscle byopsy and are scheduled to go back on Dec 3rd and 4th to start taking the medicine. As we progress in this process i will post here my observations.
I am wondering for those who are already on PTC124 for a while... has there been any improvements in energy levels, strenght......? any side effects have been noticed? Could you guys post your observations until now? That would be greatly appreciated by the families behind of you in the process.
Thanks
hello
some news after more than 3 months that my son takes the PTC. I think he takes the medecine and not the placebo because he has had at the beginning side effects but we don' see at the moment any improvment.
has anyone seen improvment?
regards
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