Tags:
Mixing up PTC-124 or "stirring up the Dark Side"
Ok, Jonathan has been on the drug for a week now; With cold Milk or cool water it just will not mix in well. The mixing directions suck and it has been a ####-#####ing time getting this stuff to mix up. It's like trying to mix Styrofoam balls into solution. UNTIL today, this evening actually.
Here's what I think works pretty good ( though I haven't run this by anyone yet).
- take a couple of tablespoons of warm about 80 degrees water. stir slowly for about a minute.
- take 2 or 3 ounces of warm milk at about room temp or a bit more NOT HOT now mix that in.
- Pop, 90% mixed no clumping, no frothing
It still tastes weird ( yes I licked the spoon) but it mixes much easier ( which is Way Cool ) and Jonathan can actually drink less than a quart of milk to get the complete dose ....
Oh, yeah, I think it gives him gas;
Michael
Mixing up PTC-124 or "stirring up the Dark Side"
Ok, Jonathan has been on the drug for a week now; With cold Milk or cool water it just will not mix in well. The mixing directions suck and it has been a ####-#####ing time getting this stuff to mix up. It's like trying to mix Styrofoam balls into solution. UNTIL today, this evening actually.
Here's what I think works pretty good ( though I haven't run this by anyone yet).
- take a couple of tablespoons of warm about 80 degrees water. stir slowly for about a minute.
- take 2 or 3 ounces of warm milk at about room temp or a bit more NOT HOT now mix that in.
- Pop, 90% mixed no clumping, no frothing
It still tastes weird ( yes I licked the spoon) but it mixes much easier ( which is Way Cool ) and Jonathan can actually drink less than a quart of milk to get the complete dose ....
Oh, yeah, I think it gives him gas;
Michael
How much of the powder do the boys have to take in the extension study?
Our son is quite lucky in the 2B study. He only has to take one A packet in the morning, one A packet midday and two B packets at night. With so little powder we really don't have serious mixing problems. It takes more liquid at night with the two packets but he is getting used to all the liquid and has never minded the taste. We stir it - he drinks some - we stir again - he drinks and so on. Then we add more water as needed. He has been taking it for more than 6 weeks. Jacob prefers it with water.
It would be nice if it were put into a capsule. It would be much faster and more convenient when you have to take it when you are not at home.
© 2023 Created by PPMD.
Powered by
Badges | Report an Issue | Privacy Policy | Terms of Service