Who considers themselves to be an expert in letter writing?
I approached Will from PPMD with this idea and he said if we think it would work coming from parents, families and friends of DMD/BMD boys we should go for it.
So here is my idea:
We get someone to write a very informative but short and to the point letter about DMD/BMD, Pat and PPMD and why Oprah needs to do a show on this. Once the letter is written it gets posted on the board for everyone to copy and paste it into their emails.
Here's the catcher! We all start to send these letters from all over the world and we send one every hour on the hour till someone gets a positive reply!
Is there anyone willing to give the letter a shot? I could write it but I tend to be too wordy as you can see from this post:)
I just got this email from Will and thought I would add this onto this post:
"In my opinion, it would be a stronger statement to start off with a joint letter written by a handful of parents and grandparents, and then follow up individually…but I think it may be stronger if the initial outreach comes from families rather than someone at PPMD, since we’ve already reached out to the show so many times."
So here is my idea:
We get someone to write a very informative but short and to the point letter about DMD/BMD, Pat and PPMD and why Oprah needs to do a show on this. Once the letter is written it gets posted on the board for everyone to copy and paste it into their emails.
Here's the catcher! We all start to send these letters from all over the world and we send one every hour on the hour till someone gets a positive reply!
Is there anyone willing to give the letter a shot? I could write it but I tend to be too wordy as you can see from this post:)
I just got this email from Will and thought I would add this onto this post:
"In my opinion, it would be a stronger statement to start off with a joint letter written by a handful of parents and grandparents, and then follow up individually…but I think it may be stronger if the initial outreach comes from families rather than someone at PPMD, since we’ve already reached out to the show so many times."
Replies to This Discussion
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Permalink Reply by R. Gardiner on
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Don does actually donate his suits for different charities to auction off and most usually fetch $10,000 or more.
Paul Johnson said:Do Don's suits come as part of the deal? ;-)
Rick Gardiner said:I believe that people such as Wayne Gretzky, Don Cherry and others.
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Permalink Reply by Jacobs Mommom on
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How about if we each send messages to all of our PPMD friends, our relatives and our friends once Paul has the final letter and we all concentrate on four talk shows for now plus I would like to concentrate also on the 3 people that are already supporting MD to see if they would take it further.
If all we have for them is snail mail addresses we send two letters to each a day. If we have faxes and/or emails we also each send two a day.
How about if we concentrate on:
Maury Povich:
beaguest@themauryshow.com
http://www.mauryshow.com/be_a_guest.html
http://www.mauryshow.com/email.php?subject=undefined
Maury Povich Show
(212) 547-8400
401 7th Ave, New York, NY 10001 Map it | Get directions Cross Streets: Between W 32nd St and W 33rd St
Oprah:
http://www.oprah.com/ord/plugform.jsp?plugId=216
The show's mailing address is:
PO Box 909715
Chicago, IL 60690
Phil McGraw - The Dr. Phil Show, 555 Melrose Avenue, Mae West Bldg., Los Angeles, CA 90038
phone 323-956-3300 fx 323-862-1144 - email: http://www.drphil.com/shows/page/contactdrphil/
Dr. Phil (with this one, may be good for Kim Innabis Reader Digest letter too):
http://www.drphil.com/plugger/respond/?plugID=10720
Dr. Phil show
5482 Wilshire Boulevard #1902
Los Angeles, CA 90036
Ellen Degeneres - The Ellen Degeneres Show, Telepictures Productions, 3500 W. Olive Avenue 10th Fl, Burbank, CA 91505
phone 818-972-0777 - fx 818-972-8960 - email: ellendegeneres@warnerbros.com
http://ellen.warnerbros.com/show/respond/?PlugID=10
http://ellen.warnerbros.com/show/respond/?PlugID=26
The Ellen DeGeneres Show
PO Box 7788
Burbank, CA 91523
ALREADY SUPPORTING MD AS A CHARITY:
ZZ Top, Agency for the Performing Arts, Agency, 250 W. 57th St. Ste 1701, New York, NY 10106
phone 212-687-0092 fx 212-687-0176
Anthony Bourdain - talk show host, chef: Inkwell Management, 521 Fifty Ave., New York, NY 10175
phone 212-922-3500 - fx 212-922-0535 - email: info@inkwellmanagement.com
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Permalink Reply by cheryl cliff on
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Hi Jacobs Mommom
Sounds good to me!
cheryl
Jacobs Mommom said:How about if we each send messages to all of our PPMD friends, our relatives and our friends once Paul has the final letter and we all concentrate on four talk shows for now plus I would like to concentrate also on the 3 people that are already supporting MD to see if they would take it further.
If all we have for them is snail mail addresses we send two letters to each a day. If we have faxes and/or emails we also each send two a day.
How about if we concentrate on:
Maury Povich:
beaguest@themauryshow.com
http://www.mauryshow.com/be_a_guest.html
http://www.mauryshow.com/email.php?subject=undefined
Maury Povich Show
(212) 547-8400
401 7th Ave, New York, NY 10001 Map it | Get directions Cross Streets: Between W 32nd St and W 33rd St
Oprah:
http://www.oprah.com/ord/plugform.jsp?plugId=216
The show's mailing address is:
PO Box 909715
Chicago, IL 60690
Phil McGraw - The Dr. Phil Show, 555 Melrose Avenue, Mae West Bldg., Los Angeles, CA 90038
phone 323-956-3300 fx 323-862-1144 - email: http://www.drphil.com/shows/page/contactdrphil/
Dr. Phil (with this one, may be good for Kim Innabis Reader Digest letter too):
http://www.drphil.com/plugger/respond/?plugID=10720
Dr. Phil show
5482 Wilshire Boulevard #1902
Los Angeles, CA 90036
Ellen Degeneres - The Ellen Degeneres Show, Telepictures Productions, 3500 W. Olive Avenue 10th Fl, Burbank, CA 91505
phone 818-972-0777 - fx 818-972-8960 - email: ellendegeneres@warnerbros.com
http://ellen.warnerbros.com/show/respond/?PlugID=10
http://ellen.warnerbros.com/show/respond/?PlugID=26
The Ellen DeGeneres Show
PO Box 7788
Burbank, CA 91523
ALREADY SUPPORTING MD AS A CHARITY:
ZZ Top, Agency for the Performing Arts, Agency, 250 W. 57th St. Ste 1701, New York, NY 10106
phone 212-687-0092 fx 212-687-0176
Anthony Bourdain - talk show host, chef: Inkwell Management, 521 Fifty Ave., New York, NY 10175
phone 212-922-3500 - fx 212-922-0535 - email: info@inkwellmanagement.com
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Okay I tried to edit my last post but it didn't work so here goes:
How about if we each send messages to all of our PPMD friends, our relatives and our friends once Paul has the final letter and we all concentrate on these talk shows or contacts for now plus I would like to concentrate also on the 3 people that are already supporting MD to see if they would help us out in other ways.
If all we have for them is snail mail addresses we send two letters to each a day. If we have faxes and/or emails we also each send two a day. If we have phone numbers we also call twice a day. If any of the contacts don't work please post so we don't keep trying them.
How about if we concentrate on:
Maury Povich:
beaguest@themauryshow.com
http://www.mauryshow.com/be_a_guest.html
http://www.mauryshow.com/email.php?subject=undefined
Maury Povich Show
(212) 547-8400
401 7th Ave, New York, NY 10001 Map it | Get directions Cross Streets: Between W 32nd St and W 33rd St
Maury c/o Hotel Pennsylvania/ Grand Ballroom, 15 Penn Plaza, New York, NY 10001
ph: 212-547-8400 - fx 212-244-3548 - www.mauryshow.com
Oprah:
http://www.oprah.com/ord/plugform.jsp?plugId=216
The show's mailing address is:
PO Box 909715
Chicago, IL 60690
Harpo Productions, Harpo Studios, 110 N. Carpenter St., Chicago, Il 60607-2146
ph: 312-633-1000 - fx: 312-633-1111 - owinfrey@harpo.com
asst: Lisa Halliday - ph: 310-278-5559
member staff: ph: 312-633-1000
Phil McGraw - The Dr. Phil Show, 555 Melrose Avenue, Mae West Bldg., Los Angeles, CA 90038
phone 323-956-3300 fx 323-862-1144 - email: http://www.drphil.com/shows/page/contactdrphil/
Dr. Phil (with this one, may be good for Kim Innabis Reader Digest letter too):
http://www.drphil.com/plugger/respond/?plugID=10720
Dr. Phil show
5482 Wilshire Boulevard #1902
Los Angeles, CA 90036
Phil McGraw - The Dr. Phil Show, 5555 Melrose Avenue, Mae West Bldg., Los Angeles, CA 90038
phone 323-956-3300 fx 323-862-1144 - email: http://www.drphil.com/shows/page/contactdrphil/
Ellen Degeneres - The Ellen Degeneres Show, Telepictures Productions, 3500 W. Olive Avenue 10th Fl, Burbank, CA 91505
phone 818-972-0777 - fx 818-972-8960 - email: ellendegeneres@warnerbros.com
http://ellen.warnerbros.com/show/respond/?PlugID=10
http://ellen.warnerbros.com/show/respond/?PlugID=26
The Ellen DeGeneres Show
PO Box 7788
Burbank, CA 91523
Whoopi Goldberg, c/o Bragman/Nyman/Cafarelli, Pacific Design Center, 8687 Melrose Avenue, Fl 8, Los Angeles, CA 90069
ph: 310-854-4800 - fx: 310-854-4848 - email: wgoldberg@bncpr.com, www.bncpr.com
Montell Williams: Mountain Movers, Inc., 433 West 53rd Street, New York, NY 10019
ph: 212-830-0300 - fx: 212-262-4608
ALREADY SUPPORTING MD AS A CHARITY:
ZZ Top, Agency for the Performing Arts, Agency, 250 W. 57th St. Ste 1701, New York, NY 10106
phone 212-687-0092 fx 212-687-0176
Anthony Bourdain - talk show host, chef: Inkwell Management, 521 Fifty Ave., New York, NY 10175
phone 212-922-3500 - fx 212-922-0535 - email: info@inkwellmanagement.com
Kevin Costner - Creative Artists Agency, LLC, P.O. Box 240002, Los Angeles, CA 90024
no other info available
Jay Leno - NBS Studios, 3000 W. Alameda Ave., Burbank, CA 91523-0001
phone 818-840-4444 www.nbc.com
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Permalink Reply by MicahsDaddy on
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For Montell, this is either his last season or he is already done. Then playing reruns until next year. Some new younger version of Montell will be taking over in 2009.
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I know that the show is done in September but I still think that he might have influence in other places and I like the name of his company. Mountain Movers, Inc.:) I'm just getting a really positive vibe about him. He's actually showed up in one of my soap operas the past few weeks!
Do you want me to get the contacts for Wayne Gretzky, Don Cherry and who else or do you have them already?
MicahsDaddy said:For Montell, this is either his last season or he is already done. Then playing reruns until next year. Some new younger version of Montell will be taking over in 2009.
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Permalink Reply by Karen Barnett on
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I was looking at the Oprah submission form and the letter can only be a maximum of 2000 characters. Will the letter be under 2000 characters? Is this the only place we have to submit the letters to her show or is there another avenue?
With Maury I am not so sure this is a topic he would even consider for his show. Every time I have tuned into that show the only topic I have seen involves paternity tests and cheating partners.
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Permalink Reply by Lori Ware on
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Hey Gang,
I am jumping back in on this late, but did want to say something about NFL players who will support us. Well, i have one! He is Andrew Whitworth with the Cincinnati Bengals, yes an Ohio team (a natural fit I think!). He is from my home town and through contacts, I talked to him and he is willing to help out. I have to call his mom as my emails to him (he gave me his email) are going to spam I think. He told me he would do whatever we needed him to do. The problem is WHAT IS THAT???
For example, Ryan Lochte at the olympics is supporting us, but I never heard about that on the Olympics. how can we use Ryan and Andrew for awareness and fundraising? I know this is a bit off the topic of letter, but I am not so sure about the NFL players only supporting the United Way...
MicahsDaddy said:Jacobs Mommom said:I also copied down a couple of local sports players...
Only problem with current sports players is that they can only help the charity of their sport or their own personal charity(s). For example, the NFL helps with United Way as one of their charities, so the players can help United Way. Only way we can get an athlete to support another cause, like PPMD, is to get one that is retired.
Maybe, getting our message into the hands of the sports agents is an idea as well. The agent can then try and pursuade his new young rookie to start a charity that benefits PPMD. It would be that players personal charity.
Scott Boras is a big time agent in Baseball...Leigh Steinberg (was) and Tom Condon (is) in Football....
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lori, i only used the united way as an example as it is an nfl supported charity. the nfl has others that i didn't use in my example.
i am involved in a charity event in san diego...an ex nfl player is one of our board members....he can't get current nfl players to appear at our event because it is not their personal charity or an nfl sponsored charity.
lets take an ex charger, current saint, for example. drew brees has the Brees Dream Foundation...his personal charity that provides care, education and opportunities for children facing adversity. this is his personal charity that he created so that he could have tax right offs and help children....but, mostly, tax right offs (honestly, right?). outside of his own events, he can't make appearances for any other events other than nfl sponsored events.
so, my point is when it comes to professional athletes, we to find some young blood to create an organization in their name to support us (ppmd). say, using LSU as a example, The Demarcus Russell Foundation...though we may be too late for him.
if your andrew can pull it off, then fantastic. since you do have contact with him and his family, maybe you can find out more from him what he can and can't do. my assumption is he can have his own personal charity that suports ppmd.
Lori Ware said:Hey Gang,
I am jumping back in on this late, but did want to say something about NFL players who will support us. Well, i have one! He is Andrew Whitworth with the Cincinnati Bengals, yes an Ohio team (a natural fit I think!). He is from my home town and through contacts, I talked to him and he is willing to help out. I have to call his mom as my emails to him (he gave me his email) are going to spam I think. He told me he would do whatever we needed him to do. The problem is WHAT IS THAT???
For example, Ryan Lochte at the olympics is supporting us, but I never heard about that on the Olympics. how can we use Ryan and Andrew for awareness and fundraising? I know this is a bit off the topic of letter, but I am not so sure about the NFL players only supporting the United Way...
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Permalink Reply by Paul Cliff on
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The current draft is 3524 characters. I'll do my best to chop it down. It will definitely be published next weekend.
Karen Barnett said:I was looking at the Oprah submission form and the letter can only be a maximum of 2000 characters. Will the letter be under 2000 characters? Is this the only place we have to submit the letters to her show or is there another avenue?
With Maury I am not so sure this is a topic he would even consider for his show. Every time I have tuned into that show the only topic I have seen involves paternity tests and cheating partners.
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I see. Andrew has been with the Bengals for about 3, maybe 4 years and does not have his own charity that I know of. i know that the QB for the Bengals supports Children's in Cincy, so Andrew has to be careful to make sure that he does not appear to be doing stuff for the hospital, but rather PPMD and DMD which just happens to be one of CCHMC's specialities.
I will try to reach Andrew soon and see what he thinks. Any ideas welcome!!
Lori
MicahsDaddy said:lori, i only used the united way as an example as it is an nfl supported charity. the nfl has others that i didn't use in my example.
i am involved in a charity event in san diego...an ex nfl player is one of our board members....he can't get current nfl players to appear at our event because it is not their personal charity or an nfl sponsored charity.
lets take an ex charger, current saint, for example. drew brees has the Brees Dream Foundation...his personal charity that provides care, education and opportunities for children facing adversity. this is his personal charity that he created so that he could have tax right offs and help children....but, mostly, tax right offs (honestly, right?). outside of his own events, he can't make appearances for any other events other than nfl sponsored events.
so, my point is when it comes to professional athletes, we to find some young blood to create an organization in their name to support us (ppmd). say, using LSU as a example, The Demarcus Russell Foundation...though we may be too late for him.
if your andrew can pull it off, then fantastic. since you do have contact with him and his family, maybe you can find out more from him what he can and can't do. my assumption is he can have his own personal charity that suports ppmd.
Lori Ware said:Hey Gang,
I am jumping back in on this late, but did want to say something about NFL players who will support us. Well, i have one! He is Andrew Whitworth with the Cincinnati Bengals, yes an Ohio team (a natural fit I think!). He is from my home town and through contacts, I talked to him and he is willing to help out. I have to call his mom as my emails to him (he gave me his email) are going to spam I think. He told me he would do whatever we needed him to do. The problem is WHAT IS THAT???
For example, Ryan Lochte at the olympics is supporting us, but I never heard about that on the Olympics. how can we use Ryan and Andrew for awareness and fundraising? I know this is a bit off the topic of letter, but I am not so sure about the NFL players only supporting the United Way...
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Thanks Paul for working on this for all of us!
Paul Cliff said:The current draft is 3524 characters. I'll do my best to chop it down. It will definitely be published next weekend.
Karen Barnett said:I was looking at the Oprah submission form and the letter can only be a maximum of 2000 characters. Will the letter be under 2000 characters? Is this the only place we have to submit the letters to her show or is there another avenue?
With Maury I am not so sure this is a topic he would even consider for his show. Every time I have tuned into that show the only topic I have seen involves paternity tests and cheating partners.
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