Who considers themselves to be an expert in letter writing?

I approached Will from PPMD with this idea and he said if we think it would work coming from parents, families and friends of DMD/BMD boys we should go for it.

So here is my idea:

We get someone to write a very informative but short and to the point letter about DMD/BMD, Pat and PPMD and why Oprah needs to do a show on this. Once the letter is written it gets posted on the board for everyone to copy and paste it into their emails.

Here's the catcher! We all start to send these letters from all over the world and we send one every hour on the hour till someone gets a positive reply!

Is there anyone willing to give the letter a shot? I could write it but I tend to be too wordy as you can see from this post:)

I just got this email from Will and thought I would add this onto this post:

"In my opinion, it would be a stronger statement to start off with a joint letter written by a handful of parents and grandparents, and then follow up individually…but I think it may be stronger if the initial outreach comes from families rather than someone at PPMD, since we’ve already reached out to the show so many times."

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You can reach Paul and I at cherylcliff@gmail.com. Thank you for doing this! I hope it will speed up the process of getting Pat in the media.
cheryl
Okay it will take some time to get other contacts in order so here are the Talk Shows and their contacts.

Here are the ones who support MD:
Kevin Costner - Creative Artists Agency, LLC, P.O. Box 240002, Los Angeles, CA 90024
no other info available

Jay Leno - his info. is in the list.

Jerry Lewis Films Inc., Production, 3160 West Sahara Avenue, Ste C-16, Las Vegas, NV 89102
phone 702-362-9730

ZZ Top, Agency for the Performing Arts, Agency, 250 W. 57th St. Ste 1701, New York, NY 10106
phone 212-687-0092 fx 212-687-0176
Anthony Bourdain - talk show host, chef: Inkwell Management, 521 Fifty Ave., New York, NY 10175
phone 212-922-3500 - fx 212-922-0535 - email: info@inkwellmanagement.com

Tina Brown - talk show host, writer: Topic A With Tina Brown, CBNC 900 Sylvan Avenue, Englewood Cliffs, NJ 07632
phone 201-735-2622 - fx 201-461-3795 - email: topicawithtinebrown@nbc.com - web: www.topicawithtinabrown.com

Adam Carolla - talk show host, radio personality: Dixon Talent, 432 West 45th Street 3rd Fl, New York, NY 10036
phone 212-262-6033 - fx 212-262-6177

Steve Colbert - talk show host, actor, writer: Comedy Central c/o The Colbert Report, 1775 Broadway, New York, NY 10019 - no other info available.

Tom Colicchio - talk show host, chef: Craft, 43 East 19th Street, New York, NY 10003 - no other info available.

Ellen Degeneres - The Ellen Degeneres Show, Telepictures Productions, 3500 W. Olive Avenue 10th Fl, Burbank, CA 91505
phone 818-972-0777 - fx 818-972-8960 - email: ellendegeneres@warnerbros.com

Michael Essany - The Michael Essany Show, c/o Mike Randazzo, 139 Concord Circle, Valparaiso, IN 46385
email: michaelessany@webtv.net

Whoopi Goldberg - Bragman/Nyman/Cafarelli, c/o Pacific Design Center, 8687 Melrose Ave. Fl 8, Los Angeles, CA 90069
phone 310-854-4800 fx 310-854-4848 email: wgoldberg@bncpr.com - www.bncpr.com

Shawn Hannity - talk show host - ABC Radio Networks, 125 West End Avenue, 6th Fl, New York, NY 10023
no other info available.

Craig Kilborn - talk show host - United Talent Agency, 9560 Wilshire Blvd., #500, Beverly Hills, CA 90212
phone 310-273-6700 fx 310-247-1111 email: kilbornc@unitedtalent.com - www.unitedtalent.com

Larry King - Larry King Live, 1 Time Warner, Center Room 802D, New York, NY 10019
phone 202-898-7690 fx 202-898-7686 www.cnn.com/larryking

Ricki Lake - Hyler Management, 3000 W. Olympic Blvd, Bldg. 5 Ste 2250, Santa Monica, CA 90404
phone 310-264-8148 fx 310-264-8147

Jay Leno - NBS Studios, 3000 W. Alameda Ave., Burbank, CA 91523-0001
phone 818-840-4444 www.nbc.com

David Letterman - Late Show with David Letterman, CBS 1697 Broadway Fl 11, New York, NY 10019
phone 212-975-4800 fx 212-975-4760 www.cbs.com/lateshow

Mark Levin - talk show host, radio personality - Citadel Communications, 7201 West Lake Mead, Las Vegas, Nevada 89128
phone 877-381-3811 email: marklevin.show@citcomm.com

Bill Maher - Brillstein Entertainment Partners, 9150 Wilshire Blvd., #350, Beverly Hills, CA 90212
phone 310-275-6133 fx 310-275-6180 http://www.hbo.com/billmaher/
Tom or Ray Maliozzi - talk show hosts - PBS, 1320 Braddock Pl, Alexandria, VA 22314
no other info available

Mary Matalin - talk show host, writer, journalist - Gaslight Inc., 424 S. Washington St., Alexandria, VA 22314
phone 703-739-6006 fx 703-739-6171

Phil McGraw - The Dr. Phil Show, 555 Melrose Avenue, Mae West Bldg., Los Angeles, CA 90038
phone 323-956-3300 fx 323-862-1144 - email: http://www.drphil.com/shows/page/contactdrphil/

Olivia Munn - talk show host - Leverage Management, 3030 Pennsylvania Ave., Santa Monica, CA 90404
phone 310-526-0320

Conan O'Brien - Late Night
Jacobs Mommom said:
Okay it will take some time to get other contacts in order so here are the Talk Shows and their contacts.

Here are the ones who support MD:
Kevin Costner - Creative Artists Agency, LLC, P.O. Box 240002, Los Angeles, CA 90024
no other info available

Jay Leno - his info. is in the list.

Jerry Lewis Films Inc., Production, 3160 West Sahara Avenue, Ste C-16, Las Vegas, NV 89102
phone 702-362-9730

ZZ Top, Agency for the Performing Arts, Agency, 250 W. 57th St. Ste 1701, New York, NY 10106
phone 212-687-0092 fx 212-687-0176
Anthony Bourdain - talk show host, chef: Inkwell Management, 521 Fifty Ave., New York, NY 10175
phone 212-922-3500 - fx 212-922-0535 - email: info@inkwellmanagement.com

Tina Brown - talk show host, writer: Topic A With Tina Brown, CBNC 900 Sylvan Avenue, Englewood Cliffs, NJ 07632
phone 201-735-2622 - fx 201-461-3795 - email: topicawithtinebrown@nbc.com - web: www.topicawithtinabrown.com

Adam Carolla - talk show host, radio personality: Dixon Talent, 432 West 45th Street 3rd Fl, New York, NY 10036
phone 212-262-6033 - fx 212-262-6177

Steve Colbert - talk show host, actor, writer: Comedy Central c/o The Colbert Report, 1775 Broadway, New York, NY 10019 - no other info available.

Tom Colicchio - talk show host, chef: Craft, 43 East 19th Street, New York, NY 10003 - no other info available.

Ellen Degeneres - The Ellen Degeneres Show, Telepictures Productions, 3500 W. Olive Avenue 10th Fl, Burbank, CA 91505
phone 818-972-0777 - fx 818-972-8960 - email: ellendegeneres@warnerbros.com

Michael Essany - The Michael Essany Show, c/o Mike Randazzo, 139 Concord Circle, Valparaiso, IN 46385
email: michaelessany@webtv.net

Whoopi Goldberg - Bragman/Nyman/Cafarelli, c/o Pacific Design Center, 8687 Melrose Ave. Fl 8, Los Angeles, CA 90069
phone 310-854-4800 fx 310-854-4848 email: wgoldberg@bncpr.com - www.bncpr.com

Shawn Hannity - talk show host - ABC Radio Networks, 125 West End Avenue, 6th Fl, New York, NY 10023
no other info available.

Craig Kilborn - talk show host - United Talent Agency, 9560 Wilshire Blvd., #500, Beverly Hills, CA 90212
phone 310-273-6700 fx 310-247-1111 email: kilbornc@unitedtalent.com - www.unitedtalent.com

Larry King - Larry King Live, 1 Time Warner, Center Room 802D, New York, NY 10019
phone 202-898-7690 fx 202-898-7686 www.cnn.com/larryking

Ricki Lake - Hyler Management, 3000 W. Olympic Blvd, Bldg. 5 Ste 2250, Santa Monica, CA 90404
phone 310-264-8148 fx 310-264-8147

Jay Leno - NBS Studios, 3000 W. Alameda Ave., Burbank, CA 91523-0001
phone 818-840-4444 www.nbc.com

David Letterman - Late Show with David Letterman, CBS 1697 Broadway Fl 11, New York, NY 10019
phone 212-975-4800 fx 212-975-4760 www.cbs.com/lateshow

Mark Levin - talk show host, radio personality - Citadel Communications, 7201 West Lake Mead, Las Vegas, Nevada 89128
phone 877-381-3811 email: marklevin.show@citcomm.com

Bill Maher - Brillstein Entertainment Partners, 9150 Wilshire Blvd., #350, Beverly Hills, CA 90212
phone 310-275-6133 fx 310-275-6180 http://www.hbo.com/billmaher/
Tom or Ray Maliozzi - talk show hosts - PBS, 1320 Braddock Pl, Alexandria, VA 22314
no other info available

Mary Matalin - talk show host, writer, journalist - Gaslight Inc., 424 S. Washington St., Alexandria, VA 22314
phone 703-739-6006 fx 703-739-6171

Phil McGraw - The Dr. Phil Show, 555 Melrose Avenue, Mae West Bldg., Los Angeles, CA 90038
phone 323-956-3300 fx 323-862-1144 - email: http://www.drphil.com/shows/page/contactdrphil/

Olivia Munn - talk show host - Leverage Management, 3030 Pennsylvania Ave., Santa Monica, CA 90404
phone 310-526-0320

Conan O'Brien - Late Night

Here are the links that Christian gave me:

Maury Povich:



beaguest@themauryshow.com
http://www.mauryshow.com/be_a_guest.html
http://www.mauryshow.com/email.php?subject=undefined


Maury Povich Show

(212) 547-8400

401 7th Ave, New York, NY 10001 Map it | Get directions Cross Streets: Between W 32nd St and W 33rd St





Oprah:



http://www.oprah.com/ord/plugform.jsp?plugId=216
2000 Characters Maximum



The show's mailing address is:

PO Box 909715

Chicago, IL 60690





Live with Regis and Kelly (if they even have guests that aren’t famous):



http://bventertainment.go.com/tv/buenavista/regisandkelly/feedback....


If you have a question or comment for "Live" and would like to contact the show, here's how:



Mailing Address:
"Live with Regis and Kelly"
7 Lincoln Square
New York, NY 10023

Or you can fax us your letter:
Fax Number: (800) 330-1106





Dr. Phil (with this one, may be good for Kim Innabi’s Reader Digest letter too):



http://www.drphil.com/plugger/respond/?plugID=10720


Dr. Phil show
5482 Wilshire Boulevard #1902
Los Angeles, CA 90036





Ellen Degeneres:



http://ellen.warnerbros.com/show/respond/?PlugID=10
http://ellen.warnerbros.com/show/respond/?PlugID=26


The Ellen DeGeneres Show
PO Box 7788
Burbank, CA 91523
Attn: Fan Mail
Outstanding work. For the conveninence of all, I will incorporate the comments into a master version that each person can then customize to their own preferences and situation. I should be able to get that done this weekend, probably late Sunday. There's of course no reason why someone couldn't take what we already have up, change it however they want and then get it going, wtth the rest of us following in sort of a Rolling Thunder approach.
Paul,
Do we have a date in mind yet to send the letters?

Paul Cliff said:
Outstanding work. For the conveninence of all, I will incorporate the comments into a master version that each person can then customize to their own preferences and situation. I should be able to get that done this weekend, probably late Sunday. There's of course no reason why someone couldn't take what we already have up, change it however they want and then get it going, wtth the rest of us following in sort of a Rolling Thunder approach.
Anytime you want. You can take what we've posted, cut and paste it to suit your self and get them out, or you can wait until I post what will be my definitive version. After that its anytime and everytime until it works or we all give up.

Rhiannon Traigle said:
Paul,
Do we have a date in mind yet to send the letters?

Paul Cliff said:
Outstanding work. For the conveninence of all, I will incorporate the comments into a master version that each person can then customize to their own preferences and situation. I should be able to get that done this weekend, probably late Sunday. There's of course no reason why someone couldn't take what we already have up, change it however they want and then get it going, wtth the rest of us following in sort of a Rolling Thunder approach.
I second that. I will do the faxs while at work I guess twice a day and do the emails twice a day and I will be starting on Monday.
Paul Cliff said:
Anytime you want. You can take what we've posted, cut and paste it to suit your self and get them out, or you can wait until I post what will be my definitive version. After that its anytime and everytime until it works or we all give up.

Rhiannon Traigle said:
Paul,
Do we have a date in mind yet to send the letters?

Paul Cliff said:
Outstanding work. For the conveninence of all, I will incorporate the comments into a master version that each person can then customize to their own preferences and situation. I should be able to get that done this weekend, probably late Sunday. There's of course no reason why someone couldn't take what we already have up, change it however they want and then get it going, wtth the rest of us following in sort of a Rolling Thunder approach.
Looks like we are closer to getting these letters/e-mails out. I was wondering...shouldn't we coordinate our efforts and start together with one celeb at a time? Would, for example, the Oprah people take a closer look if several messages came from a variety of parents and loved ones during the same timeframe, like a month or so? Then, together we move on to the next celeb on the list we have coordinated?

And, so far it appears there are a few parents at this thread, shouldn't we ask our friends from PPMD to send them as well? How about extending that to include relatives and supporters outside this website?

I don't know if all/any of this is a good idea but wanted to bring it up just in case it might make more impact on the results. Then it might go badly, perhaps sending too many at the same time might turn them away?

what do you all think? should we coordinate our efforts or just do it?
either way - let's roll
cheryl
Jacobs Mommom said:
I also copied down a couple of local sports players...

Only problem with current sports players is that they can only help the charity of their sport or their own personal charity(s). For example, the NFL helps with United Way as one of their charities, so the players can help United Way. Only way we can get an athlete to support another cause, like PPMD, is to get one that is retired.

Maybe, getting our message into the hands of the sports agents is an idea as well. The agent can then try and pursuade his new young rookie to start a charity that benefits PPMD. It would be that players personal charity.

Scott Boras is a big time agent in Baseball...Leigh Steinberg (was) and Tom Condon (is) in Football....
Just got onto this topic today --have been busy with Lukey's Grandpa and his brain hemorrhage which is just about under control with no ill effects. For all it's worth I also think we should all start at once to overwhelm one at a time for a while and then just keep going. I can't tell you how many letters I have written to celebrities-- 20 at a time via snail mail with no results but I and family and friends will be sitting for hours a day sending e-mails,snails and calls. I went through these six pages very fast with enthusiasm which I needed today after a "down time" thinking of our little Lukey. I may have missed it but did someone say it should be strongly said that Jerry Lewis and Labor Day does VERY LITTLE for Duchenne and RESEARCH for Duchenne? I pass out my cards with our First Giving Website to everyone I talk to as I have lost all pride re DMD and not only do they not know Duchenne but they all think all MD is the same and Jerry takes care of it. We are on board--I can't tell you what I have suggested to my family that I would do to get attention from T.V, newspapers etc. They vetoed them all but who knows. Lukey's Grandma
Hello Everyone
I have just discovered this entry and think that this is a great idea. I will certainly participate and do all I can to help. We live in Canada and I know that there are a number of members outside the US using PPMD so make sure the letter is worded in such a way to include us all. Here in Canada we have a popular Celebrities and Athletes that may not be on some of your lists. I believe that people such as Wayne Gretzky, Don Cherry and others along with popular CBC/CTV talk shows would read our letters and join our fight.
Do Don's suits come as part of the deal? ;-)

Rick Gardiner said:
I believe that people such as Wayne Gretzky, Don Cherry and others.

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