I don't think this is a problem related to just DMD kids. This isn't a problem I have with my son as he will eat absolutely ANYTHING, and try all new foods put in front of him. However, my nephew is 6, DMD-free and is a bugger when it comes to eating. He rarely eats anything. My daughter, though only 3, has been a poor eater her whole life. Both my SIL and myself have mentioned this to our peds and their reply was much the same - if kids are hungry they will eat, and as long as they look a healthy weight we shouldn't be too concerned. The fact he has a couple of snacks throughout the day might be enough to provide him wiht the energy he needs, and he is probably filling up substantially on the milk he drinks. Reduce the milk and you might see an increase in appetite. Of course, you need to find a way to reduce the milk without the fits and perhaps someone else can recommend how to do that. Another thing is, if he drinks so much milk, perhaps you can make sure he is getting a specialised milk that has loads of vitamins and minerals in it. My kids are on NAN3 as it is a formula-based milk for kids older than 3. It is loaded with vitamins, omegas, and minerals and so good for them - better than plain old cow's milk. At least then you know he is getting much needed nutrients. Maybe you could also try a milkshake with an egg for protein, honey, and wheatgerm? Kind of like a liquid meal?
Good luck and let us know how you go.
Well, I finally got him to eat his sandwich for lunch. My trick? I found a sandwich cutter at Wal-Mart. It cuts it into two little dinosaur shapes. Who knew lunch could be handled so easily? And he's eating it faster than he eats anything else. Little bugger.