I'm starting to get a bit worried about Sam's eating...or lack there of. He's always been an incredibly slow eater, but it's taking him over an hour to eat a sandwich now. And that's if I can get him to eat at all. I'm lucky if I can get half a bowl of cereal or half a waffle into him in the mornings. He'd rather just skip lunch it seems. He eats dinner for the most part, but takes so long to do it. Never has a clean plate either, even though I don't give him much to begin with. He does snack some in the afternoons. Usually a stick of cheese, grapes, half a container of yogurt. But he drinks a good bit of milk throughout the day. I've tried limiting the milk, but I can't take the fits he throws.

Has anyone had experience with this? We see Dr Wong next Tuesday, so I'll be sure to ask her, and the nutritionist, about it.

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I completely understand. Deacon would prefer to just snack, and drinks tons of milk! I can hardly get him to drink anything else.I too have tried to limit this but he will freak out and beg for his "milky" I've tried bribing him, forcing him nothing works. If the Dr. gives you any good tips, PLEASE let me know!
Alicia
It is actually healthier to graze throughout the day and to slow down when we do eat a more substantial meal. Sometimes our kids just instinctively know better than us how to control eating. I know it's frustrating for us parents, but as long as he is maintaining a steady weight, you probably don't have anything to worry about.
I don't think this is a problem related to just DMD kids. This isn't a problem I have with my son as he will eat absolutely ANYTHING, and try all new foods put in front of him. However, my nephew is 6, DMD-free and is a bugger when it comes to eating. He rarely eats anything. My daughter, though only 3, has been a poor eater her whole life. Both my SIL and myself have mentioned this to our peds and their reply was much the same - if kids are hungry they will eat, and as long as they look a healthy weight we shouldn't be too concerned. The fact he has a couple of snacks throughout the day might be enough to provide him wiht the energy he needs, and he is probably filling up substantially on the milk he drinks. Reduce the milk and you might see an increase in appetite. Of course, you need to find a way to reduce the milk without the fits and perhaps someone else can recommend how to do that. Another thing is, if he drinks so much milk, perhaps you can make sure he is getting a specialised milk that has loads of vitamins and minerals in it. My kids are on NAN3 as it is a formula-based milk for kids older than 3. It is loaded with vitamins, omegas, and minerals and so good for them - better than plain old cow's milk. At least then you know he is getting much needed nutrients. Maybe you could also try a milkshake with an egg for protein, honey, and wheatgerm? Kind of like a liquid meal?

Good luck and let us know how you go.
Sharyn.
My son is about to turn 4. His appetite is fine, and he eats a variety of foods, but can be picky about new things. The thing that interested me in this string of conversation was the milk discussion. We have tried everything to get him to drink something other than milk, but he refuses. No juice, no water, nothing! I guess in a way the milk obsession is good, b/c it's keeping his bones strong (in the event of falls). But it's interesting that other boys seems to have a milk fix too.
Well, I finally got him to eat his sandwich for lunch. My trick? I found a sandwich cutter at Wal-Mart. It cuts it into two little dinosaur shapes. Who knew lunch could be handled so easily? And he's eating it faster than he eats anything else. Little bugger.
Yeah, the milk thing struck me, too. Ewan has always been a glutton for milk. Our bodies sometimes have a way of making us crave the things we need. I wonder if something about DMD causes boys to crave milk. That's kind of frightening, actually, because we have a two year-old who has the same level of craving that Ewan has always had.
My son now 9 also is like this. He will not drink anyhting but milk. No juice no water no soda nothing. He has never eaten much. Christian however almost never snacks at all. Christian has also always been a healthy weight so the nutritionist and his reg doctor does not listen to me when I tell them that he doesn''t eat. I have not given up and still try to get him to eat every day usually to no avail. I do not know what else to do.
My son used to drink pediasure before they changed it from a can to abottle. Now he will not drink it says it is too bubbly.
Sharyn Thompson said:
I don't think this is a problem related to just DMD kids. This isn't a problem I have with my son as he will eat absolutely ANYTHING, and try all new foods put in front of him. However, my nephew is 6, DMD-free and is a bugger when it comes to eating. He rarely eats anything. My daughter, though only 3, has been a poor eater her whole life. Both my SIL and myself have mentioned this to our peds and their reply was much the same - if kids are hungry they will eat, and as long as they look a healthy weight we shouldn't be too concerned. The fact he has a couple of snacks throughout the day might be enough to provide him wiht the energy he needs, and he is probably filling up substantially on the milk he drinks. Reduce the milk and you might see an increase in appetite. Of course, you need to find a way to reduce the milk without the fits and perhaps someone else can recommend how to do that. Another thing is, if he drinks so much milk, perhaps you can make sure he is getting a specialised milk that has loads of vitamins and minerals in it. My kids are on NAN3 as it is a formula-based milk for kids older than 3. It is loaded with vitamins, omegas, and minerals and so good for them - better than plain old cow's milk. At least then you know he is getting much needed nutrients. Maybe you could also try a milkshake with an egg for protein, honey, and wheatgerm? Kind of like a liquid meal?

Good luck and let us know how you go.
Sharyn.
I wish taht would work for Christian but he won't even touch bread I have tried different shapes and other things but he still won't eat it.

Laurie Paschal said:
Well, I finally got him to eat his sandwich for lunch. My trick? I found a sandwich cutter at Wal-Mart. It cuts it into two little dinosaur shapes. Who knew lunch could be handled so easily? And he's eating it faster than he eats anything else. Little bugger.
My son's diet is mostly protein. Milk lover. Many foods he dropped , skipped but his diet is healthy as we do not have any problems with his health besides DMD . I have little theory . I think that his body needs lot of protein and is crawling for it and picks the course of his diet.
Joshua isn't like this when it comes to milk, but he takes a calcium and vit. D supplement daily. Do your boys too?

Naomi
Might it be a chewing and/or swallowing thing, his muscles there could be slightly weaker. I know mine are terrible, from about 17(i know your son is probably younger, but theres no knowing when it could happen) I had major trouble swallowing, my diet was very restricted and it took an age to eat, I felt I would choke on every mouthful. So much so, that i went from 11stone (154pounds) to 6stone (84pounds). The only way I solved this way by taking food supplements and crucially pureed food, now I eat much more. Fruits, vegetables, meats, i'm back up to a healthier 9stone(126pounds) now.

In your case though, it could be normal childrens behaviour

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