Our grandson Jacob has been on the ptc124/placebo for 9 weeks now. We feel the same, either way after the study he will start the medicine, if he isn't already on it. We have noticed there's been a significant improvement in this verbal communication and he isn't falling as much. This can be attributed to school starting back at the same time he started the study so we're not getting our hopes up too much that's he's actually on the meds. We continue to pray for strength for what ever happens.