Replies to This Discussion

Permalink Reply by Lori Ware on July 24, 2008 at 3:59pm

private insurance will be primary, but each state is mandated by the Federal law "disabled child living at home". Suppossedly, your child can get medicade as a back up to your primary insurance regardless of income. Some states have a waiting list, like us...10 years!!!!! I live in Louisana. Where do you live? That info will help some from that state help you figure it out....
Sorry you have had to join us, but please know there is hope now (regardless of what the doc may have told you!!).
Lori
www.caringbridge.org/visit/seph

Permalink Reply by Bains on July 24, 2008 at 6:01pm

With both parents working most likely SSI is not eligible but Medicaid Waiver should help. I am in the process of obtaining one for my sone in Virginia

Permalink Reply by joann on July 25, 2008 at 11:40am

Lori Ware said:

private insurance will be primary, but each state is mandated by the Federal law "disabled child living at home". Suppossedly, your child can get medicade as a back up to your primary insurance regardless of income. Some states have a waiting list, like us...10 years!!!!! I live in Louisana. Where do you live? That info will help some from that state help you figure it out....
Sorry you have had to join us, but please know there is hope now (regardless of what the doc may have told you!!).
Lori
www.caringbridge.org/visit/seph

Permalink Reply by joann on July 25, 2008 at 11:41am

Lori Ware said:

private insurance will be primary, but each state is mandated by the Federal law "disabled child living at home". Suppossedly, your child can get medicade as a back up to your primary insurance regardless of income. Some states have a waiting list, like us...10 years!!!!! I live in Louisana. Where do you live? That info will help some from that state help you figure it out....
Sorry you have had to join us, but please know there is hope now (regardless of what the doc may have told you!!).
Lori
www.caringbridge.org/visit/seph

Permalink Reply by joann on July 25, 2008 at 11:44am

dear lori thank you for your reply i live in nassau cty li n.y.my grandson has this illiness and i am trying to help my daughter with some of the health insurence .... thanks again stay hopeful and god bless these children Joann.....

Permalink Reply by joann on July 25, 2008 at 11:45am

Godbless said:

With both parents working most likely SSI is not eligible but Medicaid Waiver should help. I am in the process of obtaining one for my sone in Virginia

Permalink Reply by joann on July 25, 2008 at 11:48am

thank you for your help its been very difficult getting health care information for my daughter and grand son..
we live in nassau cty. L.I. N.Y. Joann