My son Dusty (15, DMD) and I were at the conference working on a film project together. The film is an assemblage of DMD boys telling jokes. It has the working title "It Ain't Funny". The topic is not really Duchenne but the spirit of the boys who deal with it.
We filmed several boys but do not yet have enough material for the film.
I am seeking footage of your son telling a joke.
Actually it would be good if the joke was repeated and filmed from two different camera angles (perhaps one tight shot focussing on face).
Please - film in a a quiet place with a boring background and some support for the camera. We have NO interest in anyone else in the family (don't take this the wrong way!)
I will donate $250 to PPMD for each video submitted. Dusty can work with DV tape or MP4 or Quicktime (best quality) on a CD or DVD.