Fantastic Rhiannon! We will certainly let you know what is happening. Could use the help! I don't see us beginning the planning stages until fall. When the kids return to school there is more time for extra stuff. Keep reminding me that you can help because I tend to forget things easily when there is a lot going on, and there is a lot going on.
Hey Cliff and Cheryl,
What a great idea - as far as names go (and I don't know how you go for copyright etc) how about "Pay it Forward" (due to the fact that the proactive person you honour is enabling the fundraising to continue?)
If you went with that theme you could then also make it an annual gala, and have this years honourary person nominate three candidates for the next year....
Just a thought.... :-)
Not sure of a name for you, but I would try to find a way to plug "Duchenne" into it.
If I was an outsider to DMD, I would have no idea what "Run for our Sons", "Kick for a Cure", "Charley's Fund", "Jett Foundation", or even "PPMD" has to do with. I think "F.E.D.", "ActionDuchenne", and "CureDuchenne" have it right with having the disorders name in their title. Someone could see the name on a poster, sticker, car and remember "duchenne" and search it when they get home.
While typing this, I came up with:
"Uniting to End Duchenne",
"Let's End Duchenne", or,
along the lines of your thought, "Honoring a Life to Help End Duchenne" (plus or minus the Help).