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I wanted to share a poem I wrote about my son Brandon with DMD

I just felt the need to sit down one night and write this from my heart:

This Mother's Life

It preys upon the innocent
Without a single clue

An unwanted future plan
Is waiting just for you

The primal fear of this mother's life
Is the loss of her precious son

The inability to make it right
And the fear of coming undone

This is a child, a child that is born
Experiencing normal things

Walking, running, goofing around
Climbing and swinging on swings

Then devastating muscle loss
Slows them down a bit

Instead of walking in the park
They'd stop and rather sit

Eventually the "trip and fall"
Brings bruises to their knees

For having the ability to walk
Was nothing but a tease

Finally, weakness sets in
Mobility becomes a must

His little legs have given out
His wheelchair will he trust

This mother screams a cry for help
For time is ticking by

His health will fail substantially
Without a cure, he'll die

I cling to hope so tightly
It cannot be the end

Desperation overcomes me
I'll lose my little best friend

Please fund this cause fully
I cannot lose my son

Please make a cure reality
His life has just begun.....

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Permalink Reply by Bains on July 14, 2008 at 12:25pm

Thanks for sharing!

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Permalink Reply by MaryEllen Sicoli on July 28, 2008 at 10:26am

This is beautiful.

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Permalink Reply by Jenny Garofalo on July 28, 2008 at 11:12am

Beautiful. May we copy if we give you credit?
Jenny

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Permalink Reply by Alisha Ballew on July 28, 2008 at 11:32am

Sure you can, no problem.

Alisha Ballew

Jenny Garofalo said:

Beautiful. May we copy if we give you credit?
Jenny

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Permalink Reply by Jessica Rownd on July 28, 2008 at 2:04pm

The poem is beautiful. It took me a while to open and read it because I knew it would make me cry. I love it though, it is our (mom's) new reality.

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Permalink Reply by Beth Kilgore on July 28, 2008 at 10:01pm

Amazing poem--sums up what many of us feel on a daily basis. What a talent you have! With your permission, I'd love to share this poem with the people who are supporting me in the Disneyland Half Marathon. Hoping and praying for a cure for Brandon and all our precious boys!

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Permalink Reply by Alisha Ballew on July 28, 2008 at 10:06pm

You are welcomed to share it with anyone, thanks so much!

Beth Kilgore said:

Amazing poem--sums up what many of us feel on a daily basis. What a talent you have! With your permission, I'd love to share this poem with the people who are supporting me in the Disneyland Half Marathon. Hoping and praying for a cure for Brandon and all our precious boys!

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Permalink Reply by Misty on July 29, 2008 at 12:34am

What a beautiful poem! Thanks for sharing!

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Permalink Reply by Holly Bailey on July 29, 2008 at 2:07am

Thanks for sharing.

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Permalink Reply by Robyn Hoffman on July 31, 2008 at 1:30pm

Alisha;
Your writing is a gift! Well, done. I hear everything you said!!!!
Have a look at an article I wrote about DMD. "Season's of a Son" it's on my page.
Can I share this with you name attached (of Course)?
Robyn

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Permalink Reply by Alisha Ballew on July 31, 2008 at 2:51pm

Sure you can share. I will look at your page also.

Robyn Hoffman said:

Alisha;
Your writing is a gift! Well, done. I hear everything you said!!!!
Have a look at an article I wrote about DMD. "Season's of a Son" it's on my page.
Can I share this with you name attached (of Course)?
Robyn