Tags:
Dear All
Where can we find Dr. Wong? How can we contact her? Our doctor here in Cyprus needs to contact some other doctors that have much more experience on boys taking steroids and are under GH treatement, before he will start the GH treatement to my son.
Can anyone help please?
Regards
Gregoris Panayiotou
Cyprus
Dr. Wong is at Cincinnati Childrens Hospital Medical Center in Cincinnati, Ohio. Above is her nurses email and Andrea will get back with you or forward your request to Dr. Wong as needed. From previous experience, Dr. Wong is happy to discuss/educate other interested doctors about anything she is doing.
My son is on HgH and doing very well. One side effect to watch for (although rare) is severe headaches that can cause a swelling of the optic nerve. This, if it is going to happen, will normally occur within the 1st 3 months of getting the daily injection AND if caught early will cause no long lasting damage, just short term discomfort. I know of one child out of the about 10 I know of on HgH this happened to. He is fine now.
I do believe that Dr. Wong began doing HgH treatments in older boys as a quality of life issue...if they were taller, they would feel better about themselves. She then saw measurable benefits to DMD in doing the HgH, but she will NOT prescribe HgH for the benefit, only if there is severe growth failure even if the natural growth horomone levels are normal (as was the case with my son).
Hope this helps!
Lori
Gregoris Panayiotou said:Dear All
Where can we find Dr. Wong? How can we contact her? Our doctor here in Cyprus needs to contact some other doctors that have much more experience on boys taking steroids and are under GH treatement, before he will start the GH treatement to my son.
Can anyone help please?
Regards
Gregoris Panayiotou
Cyprus
Dr. Wong is at Cincinnati Childrens Hospital Medical Center in Cincinnati, Ohio. Above is her nurses email and Andrea will get back with you or forward your request to Dr. Wong as needed. From previous experience, Dr. Wong is happy to discuss/educate other interested doctors about anything she is doing.
My son is on HgH and doing very well. One side effect to watch for (although rare) is severe headaches that can cause a swelling of the optic nerve. This, if it is going to happen, will normally occur within the 1st 3 months of getting the daily injection AND if caught early will cause no long lasting damage, just short term discomfort. I know of one child out of the about 10 I know of on HgH this happened to. He is fine now.
I do believe that Dr. Wong began doing HgH treatments in older boys as a quality of life issue...if they were taller, they would feel better about themselves. She then saw measurable benefits to DMD in doing the HgH, but she will NOT prescribe HgH for the benefit, only if there is severe growth failure even if the natural growth horomone levels are normal (as was the case with my son).
Hope this helps!
Lori
Gregoris Panayiotou said:Dear All
Where can we find Dr. Wong? How can we contact her? Our doctor here in Cyprus needs to contact some other doctors that have much more experience on boys taking steroids and are under GH treatement, before he will start the GH treatement to my son.
Can anyone help please?
Regards
Gregoris Panayiotou
Cyprus
Dear Lori
I am back again. Our doctor in Cyprus have not managed yet to contact Dr. Wong unfortunately! Can I contact her nurse myself? Is this possible?
Also: What is the dosage of HgH that your son takes right now?
We are really helpless here in Cyprus as far as it concerns the HgH and boys with DMD.
Thanking you in advance
Greg
Lori Ware said:Dr. Wong is at Cincinnati Childrens Hospital Medical Center in Cincinnati, Ohio. Above is her nurses email and Andrea will get back with you or forward your request to Dr. Wong as needed. From previous experience, Dr. Wong is happy to discuss/educate other interested doctors about anything she is doing.
My son is on HgH and doing very well. One side effect to watch for (although rare) is severe headaches that can cause a swelling of the optic nerve. This, if it is going to happen, will normally occur within the 1st 3 months of getting the daily injection AND if caught early will cause no long lasting damage, just short term discomfort. I know of one child out of the about 10 I know of on HgH this happened to. He is fine now.
I do believe that Dr. Wong began doing HgH treatments in older boys as a quality of life issue...if they were taller, they would feel better about themselves. She then saw measurable benefits to DMD in doing the HgH, but she will NOT prescribe HgH for the benefit, only if there is severe growth failure even if the natural growth horomone levels are normal (as was the case with my son).
Hope this helps!
Lori
Gregoris Panayiotou said:Dear All
Where can we find Dr. Wong? How can we contact her? Our doctor here in Cyprus needs to contact some other doctors that have much more experience on boys taking steroids and are under GH treatement, before he will start the GH treatement to my son.
Can anyone help please?
Regards
Gregoris Panayiotou
Cyprus
Dear Lori
Happy and healthy new year to you and your family! How are you?
We have sent 2 e-mails to Andrea (one from our endocrinologist and one from me) for George's case to have Dr. Wong's opinion. Andrea replied that he is forwarding the e-mails to Dr. Wong, but we did not have any answer from Dr. Wong still.
I understand that Dr. Wong is very very busy but we need her valuable opinion ASAP. Time is ticking. We have been trying now for 6 months to decide if we are going to give George HgH and still we have not decided to do that.
Lori I know that I may ask a lot from you but, can you help me getting an answer from Dr. Wong? I understand that you have a good relation with Dr. Wong so you may tell her something about George. This would be very helpful for us. Is this possible?
Greg
Lori Ware said:Hi Greg,
Yes, feel free to try to contact Andrea yourself. I know Dr. Wong has been traveling some and that (everyday is busy) she has an overloaded clinic on Tuesdays and Thursdays! Anyway, yes, email Andrea directly. As for Seph, he is on .8 of Genetropin (I hope I spelled that right). When we began he was 42 inches and 42 lbs with normal levels of HgH in his blood (and age 6.5). Sorry it has taken so long to contact Dr. Wong, I know also that she is taking leave over the Holiday to go home (again an overseas travel)...I want to say she will be gone for 2 weeks, but she normally stays in touch by email with her office (my understanding)....
Good Luck!
Lori
Gregoris Panayiotou said:Dear Lori
I am back again. Our doctor in Cyprus have not managed yet to contact Dr. Wong unfortunately! Can I contact her nurse myself? Is this possible?
Also: What is the dosage of HgH that your son takes right now?
We are really helpless here in Cyprus as far as it concerns the HgH and boys with DMD.
Thanking you in advance
Greg
Lori Ware said:Dr. Wong is at Cincinnati Childrens Hospital Medical Center in Cincinnati, Ohio. Above is her nurses email and Andrea will get back with you or forward your request to Dr. Wong as needed. From previous experience, Dr. Wong is happy to discuss/educate other interested doctors about anything she is doing.
My son is on HgH and doing very well. One side effect to watch for (although rare) is severe headaches that can cause a swelling of the optic nerve. This, if it is going to happen, will normally occur within the 1st 3 months of getting the daily injection AND if caught early will cause no long lasting damage, just short term discomfort. I know of one child out of the about 10 I know of on HgH this happened to. He is fine now.
I do believe that Dr. Wong began doing HgH treatments in older boys as a quality of life issue...if they were taller, they would feel better about themselves. She then saw measurable benefits to DMD in doing the HgH, but she will NOT prescribe HgH for the benefit, only if there is severe growth failure even if the natural growth horomone levels are normal (as was the case with my son).
Hope this helps!
Lori
Gregoris Panayiotou said:Dear All
Where can we find Dr. Wong? How can we contact her? Our doctor here in Cyprus needs to contact some other doctors that have much more experience on boys taking steroids and are under GH treatement, before he will start the GH treatement to my son.
Can anyone help please?
Regards
Gregoris Panayiotou
Cyprus
Hi Greg, send me a private email. Loriware@gmail.com Thanks!
Gregoris Panayiotou said:Dear Lori
Happy and healthy new year to you and your family! How are you?
We have sent 2 e-mails to Andrea (one from our endocrinologist and one from me) for George's case to have Dr. Wong's opinion. Andrea replied that he is forwarding the e-mails to Dr. Wong, but we did not have any answer from Dr. Wong still.
I understand that Dr. Wong is very very busy but we need her valuable opinion ASAP. Time is ticking. We have been trying now for 6 months to decide if we are going to give George HgH and still we have not decided to do that.
Lori I know that I may ask a lot from you but, can you help me getting an answer from Dr. Wong? I understand that you have a good relation with Dr. Wong so you may tell her something about George. This would be very helpful for us. Is this possible?
Greg
Lori Ware said:Hi Greg,
Yes, feel free to try to contact Andrea yourself. I know Dr. Wong has been traveling some and that (everyday is busy) she has an overloaded clinic on Tuesdays and Thursdays! Anyway, yes, email Andrea directly. As for Seph, he is on .8 of Genetropin (I hope I spelled that right). When we began he was 42 inches and 42 lbs with normal levels of HgH in his blood (and age 6.5). Sorry it has taken so long to contact Dr. Wong, I know also that she is taking leave over the Holiday to go home (again an overseas travel)...I want to say she will be gone for 2 weeks, but she normally stays in touch by email with her office (my understanding)....
Good Luck!
Lori
Gregoris Panayiotou said:Dear Lori
I am back again. Our doctor in Cyprus have not managed yet to contact Dr. Wong unfortunately! Can I contact her nurse myself? Is this possible?
Also: What is the dosage of HgH that your son takes right now?
We are really helpless here in Cyprus as far as it concerns the HgH and boys with DMD.
Thanking you in advance
Greg
Lori Ware said:Dr. Wong is at Cincinnati Childrens Hospital Medical Center in Cincinnati, Ohio. Above is her nurses email and Andrea will get back with you or forward your request to Dr. Wong as needed. From previous experience, Dr. Wong is happy to discuss/educate other interested doctors about anything she is doing.
My son is on HgH and doing very well. One side effect to watch for (although rare) is severe headaches that can cause a swelling of the optic nerve. This, if it is going to happen, will normally occur within the 1st 3 months of getting the daily injection AND if caught early will cause no long lasting damage, just short term discomfort. I know of one child out of the about 10 I know of on HgH this happened to. He is fine now.
I do believe that Dr. Wong began doing HgH treatments in older boys as a quality of life issue...if they were taller, they would feel better about themselves. She then saw measurable benefits to DMD in doing the HgH, but she will NOT prescribe HgH for the benefit, only if there is severe growth failure even if the natural growth horomone levels are normal (as was the case with my son).
Hope this helps!
Lori
Gregoris Panayiotou said:Dear All
Where can we find Dr. Wong? How can we contact her? Our doctor here in Cyprus needs to contact some other doctors that have much more experience on boys taking steroids and are under GH treatement, before he will start the GH treatement to my son.
Can anyone help please?
Regards
Gregoris Panayiotou
Cyprus
Dear Lori
I have sent you an e-mail.
Greg
Lori Ware said:Hi Greg, send me a private email. Loriware@gmail.com Thanks!
Gregoris Panayiotou said:Dear Lori
Happy and healthy new year to you and your family! How are you?
We have sent 2 e-mails to Andrea (one from our endocrinologist and one from me) for George's case to have Dr. Wong's opinion. Andrea replied that he is forwarding the e-mails to Dr. Wong, but we did not have any answer from Dr. Wong still.
I understand that Dr. Wong is very very busy but we need her valuable opinion ASAP. Time is ticking. We have been trying now for 6 months to decide if we are going to give George HgH and still we have not decided to do that.
Lori I know that I may ask a lot from you but, can you help me getting an answer from Dr. Wong? I understand that you have a good relation with Dr. Wong so you may tell her something about George. This would be very helpful for us. Is this possible?
Greg
Lori Ware said:Hi Greg,
Yes, feel free to try to contact Andrea yourself. I know Dr. Wong has been traveling some and that (everyday is busy) she has an overloaded clinic on Tuesdays and Thursdays! Anyway, yes, email Andrea directly. As for Seph, he is on .8 of Genetropin (I hope I spelled that right). When we began he was 42 inches and 42 lbs with normal levels of HgH in his blood (and age 6.5). Sorry it has taken so long to contact Dr. Wong, I know also that she is taking leave over the Holiday to go home (again an overseas travel)...I want to say she will be gone for 2 weeks, but she normally stays in touch by email with her office (my understanding)....
Good Luck!
Lori
Gregoris Panayiotou said:Dear Lori
I am back again. Our doctor in Cyprus have not managed yet to contact Dr. Wong unfortunately! Can I contact her nurse myself? Is this possible?
Also: What is the dosage of HgH that your son takes right now?
We are really helpless here in Cyprus as far as it concerns the HgH and boys with DMD.
Thanking you in advance
Greg
Lori Ware said:Dr. Wong is at Cincinnati Childrens Hospital Medical Center in Cincinnati, Ohio. Above is her nurses email and Andrea will get back with you or forward your request to Dr. Wong as needed. From previous experience, Dr. Wong is happy to discuss/educate other interested doctors about anything she is doing.
My son is on HgH and doing very well. One side effect to watch for (although rare) is severe headaches that can cause a swelling of the optic nerve. This, if it is going to happen, will normally occur within the 1st 3 months of getting the daily injection AND if caught early will cause no long lasting damage, just short term discomfort. I know of one child out of the about 10 I know of on HgH this happened to. He is fine now.
I do believe that Dr. Wong began doing HgH treatments in older boys as a quality of life issue...if they were taller, they would feel better about themselves. She then saw measurable benefits to DMD in doing the HgH, but she will NOT prescribe HgH for the benefit, only if there is severe growth failure even if the natural growth horomone levels are normal (as was the case with my son).
Hope this helps!
Lori
Gregoris Panayiotou said:Dear All
Where can we find Dr. Wong? How can we contact her? Our doctor here in Cyprus needs to contact some other doctors that have much more experience on boys taking steroids and are under GH treatement, before he will start the GH treatement to my son.
Can anyone help please?
Regards
Gregoris Panayiotou
Cyprus
Greg, I did not get the email...can you try again? Thanks! Lori
Gregoris Panayiotou said:Dear Lori
I have sent you an e-mail.
Greg
Lori Ware said:Hi Greg, send me a private email. Loriware@gmail.com Thanks!
Gregoris Panayiotou said:Dear Lori
Happy and healthy new year to you and your family! How are you?
We have sent 2 e-mails to Andrea (one from our endocrinologist and one from me) for George's case to have Dr. Wong's opinion. Andrea replied that he is forwarding the e-mails to Dr. Wong, but we did not have any answer from Dr. Wong still.
I understand that Dr. Wong is very very busy but we need her valuable opinion ASAP. Time is ticking. We have been trying now for 6 months to decide if we are going to give George HgH and still we have not decided to do that.
Lori I know that I may ask a lot from you but, can you help me getting an answer from Dr. Wong? I understand that you have a good relation with Dr. Wong so you may tell her something about George. This would be very helpful for us. Is this possible?
Greg
Lori Ware said:Hi Greg,
Yes, feel free to try to contact Andrea yourself. I know Dr. Wong has been traveling some and that (everyday is busy) she has an overloaded clinic on Tuesdays and Thursdays! Anyway, yes, email Andrea directly. As for Seph, he is on .8 of Genetropin (I hope I spelled that right). When we began he was 42 inches and 42 lbs with normal levels of HgH in his blood (and age 6.5). Sorry it has taken so long to contact Dr. Wong, I know also that she is taking leave over the Holiday to go home (again an overseas travel)...I want to say she will be gone for 2 weeks, but she normally stays in touch by email with her office (my understanding)....
Good Luck!
Lori
Gregoris Panayiotou said:Dear Lori
I am back again. Our doctor in Cyprus have not managed yet to contact Dr. Wong unfortunately! Can I contact her nurse myself? Is this possible?
Also: What is the dosage of HgH that your son takes right now?
We are really helpless here in Cyprus as far as it concerns the HgH and boys with DMD.
Thanking you in advance
Greg
Lori Ware said:Dr. Wong is at Cincinnati Childrens Hospital Medical Center in Cincinnati, Ohio. Above is her nurses email and Andrea will get back with you or forward your request to Dr. Wong as needed. From previous experience, Dr. Wong is happy to discuss/educate other interested doctors about anything she is doing.
My son is on HgH and doing very well. One side effect to watch for (although rare) is severe headaches that can cause a swelling of the optic nerve. This, if it is going to happen, will normally occur within the 1st 3 months of getting the daily injection AND if caught early will cause no long lasting damage, just short term discomfort. I know of one child out of the about 10 I know of on HgH this happened to. He is fine now.
I do believe that Dr. Wong began doing HgH treatments in older boys as a quality of life issue...if they were taller, they would feel better about themselves. She then saw measurable benefits to DMD in doing the HgH, but she will NOT prescribe HgH for the benefit, only if there is severe growth failure even if the natural growth horomone levels are normal (as was the case with my son).
Hope this helps!
Lori
Gregoris Panayiotou said:Dear All
Where can we find Dr. Wong? How can we contact her? Our doctor here in Cyprus needs to contact some other doctors that have much more experience on boys taking steroids and are under GH treatement, before he will start the GH treatement to my son.
Can anyone help please?
Regards
Gregoris Panayiotou
Cyprus
Dear Lori
I have re-sent the e-mail. Have you received it? If not then please provide me with another e-mail address if you have one.
Thanks again for your time
Greg
Lori Ware said:Greg, I did not get the email...can you try again? Thanks! Lori
Gregoris Panayiotou said:Dear Lori
I have sent you an e-mail.
Greg
Lori Ware said:Hi Greg, send me a private email. Loriware@gmail.com Thanks!
Gregoris Panayiotou said:Dear Lori
Happy and healthy new year to you and your family! How are you?
We have sent 2 e-mails to Andrea (one from our endocrinologist and one from me) for George's case to have Dr. Wong's opinion. Andrea replied that he is forwarding the e-mails to Dr. Wong, but we did not have any answer from Dr. Wong still.
I understand that Dr. Wong is very very busy but we need her valuable opinion ASAP. Time is ticking. We have been trying now for 6 months to decide if we are going to give George HgH and still we have not decided to do that.
Lori I know that I may ask a lot from you but, can you help me getting an answer from Dr. Wong? I understand that you have a good relation with Dr. Wong so you may tell her something about George. This would be very helpful for us. Is this possible?
Greg
Lori Ware said:Hi Greg,
Yes, feel free to try to contact Andrea yourself. I know Dr. Wong has been traveling some and that (everyday is busy) she has an overloaded clinic on Tuesdays and Thursdays! Anyway, yes, email Andrea directly. As for Seph, he is on .8 of Genetropin (I hope I spelled that right). When we began he was 42 inches and 42 lbs with normal levels of HgH in his blood (and age 6.5). Sorry it has taken so long to contact Dr. Wong, I know also that she is taking leave over the Holiday to go home (again an overseas travel)...I want to say she will be gone for 2 weeks, but she normally stays in touch by email with her office (my understanding)....
Good Luck!
Lori
Gregoris Panayiotou said:Dear Lori
I am back again. Our doctor in Cyprus have not managed yet to contact Dr. Wong unfortunately! Can I contact her nurse myself? Is this possible?
Also: What is the dosage of HgH that your son takes right now?
We are really helpless here in Cyprus as far as it concerns the HgH and boys with DMD.
Thanking you in advance
Greg
Lori Ware said:Dr. Wong is at Cincinnati Childrens Hospital Medical Center in Cincinnati, Ohio. Above is her nurses email and Andrea will get back with you or forward your request to Dr. Wong as needed. From previous experience, Dr. Wong is happy to discuss/educate other interested doctors about anything she is doing.
My son is on HgH and doing very well. One side effect to watch for (although rare) is severe headaches that can cause a swelling of the optic nerve. This, if it is going to happen, will normally occur within the 1st 3 months of getting the daily injection AND if caught early will cause no long lasting damage, just short term discomfort. I know of one child out of the about 10 I know of on HgH this happened to. He is fine now.
I do believe that Dr. Wong began doing HgH treatments in older boys as a quality of life issue...if they were taller, they would feel better about themselves. She then saw measurable benefits to DMD in doing the HgH, but she will NOT prescribe HgH for the benefit, only if there is severe growth failure even if the natural growth horomone levels are normal (as was the case with my son).
Hope this helps!
Lori
Gregoris Panayiotou said:Dear All
Where can we find Dr. Wong? How can we contact her? Our doctor here in Cyprus needs to contact some other doctors that have much more experience on boys taking steroids and are under GH treatement, before he will start the GH treatement to my son.
Can anyone help please?
Regards
Gregoris Panayiotou
Cyprus
So Glad!!! Let us know how it goes!
© 2023 Created by PPMD.
Powered by
Badges | Report an Issue | Privacy Policy | Terms of Service