I would like to start this discussion because it is so amazing to see the similarities in boys with similar deletions. A few of us moms have been chatting and so far, all our young men have a weight problem, have behaviour and mood problems, if i can be more explicit since young have seen the world differently to most, my son is highly intellengent, but yet seems to lack logic. Eg he will talk to adults easy and captivate them for hours with his broad knowledge, but has constantly battled with basic things like times, things being clean, things in his room being dust free, his clothes being perfect, his hair being in place, his feet straight on his footplates to name only a few. He has no friends as he has never been understood. He battles with learning but can recite conversations you had months ago about amazing things. He is a monster with his moods but gives us more laughs than i can ever wish for. He was in his chair around 8, he has always battled with weight which sets the mood for all of our lives. he is on heart medication which now has made his heart function normally, and he is on a bipap at night which has hugely improved his quality of his days. He has a good straight spine and really seems so well all round. My hope for this discussion is to find families like mine because so far everyone with boys with this deletion is over the age of 20 which then gives me true hope for the future.