how and when these two words would sum up the anxiety of parents of DMD children. wait is ok but how long

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Embedding FDA officials in clinical trials would be a good idea. Until that happens, I hope that the researchers who attend the conference in July will tell us where their roadblocks are so that the PPMD advocacy machine can go to work. If Pat needs to metaphorically string up some dude in a sailor suit, I'll get the metaphorical rope.
....And the rest of us will hold that rope! Terry Porcaro

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