All Discussions Tagged 'Duchenne' (6)

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Moving to the US. Which city could be a good place for Duchenne management? Hi All, I am moving to the US, and hoping to enrol my 4 year old son for etiplersen phase 3 trial. We have an option to move to any city o… Started by Rahul Singh	5	Jul 14, 2014 Reply by Rupjani B
Research Opportunity Hi, My name is Brenna and I am a genetic counseling student at the University of Oklahoma. As part of my degree I am completing a research… Started by Brenna Mellicker	0	Dec 16, 2013
Staff If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be? If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be? PPMD’s 2012 Co… Started by Kathi Kinnett	25	Oct 18, 2013 Reply by Tina Tsonis
Cardiomyopathy/Heart Failure - Left Ventricular Assist Devices Hello Everyone, I am a female with Duchenne MD I will be 24 years old in August. My heart took a turn for the worse in Jan. 2013 and I had… Started by Susana Arroyo	0	Jun 9, 2013
For DMD parents by Dr Rhodes about STS Treatment I thought everyone would like to check out what Dr. Rhodes has to say as he talks about some of the misconceptions of STS treatment... http… Started by Misty VanderWeele	1	Mar 3, 2011 Reply by pop jarvis
Saving Our Son's...one story at a time! If you are a family affected with DMD and would like to be part of the DMD movement and bring Awareness up front, we are looking for 10 mor… Started by Dee	0	Nov 23, 2010