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All Discussions Tagged 'Duchenne' (6)

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Moving to the US. Which city could be a good place for Duchenne management?

Hi All, I am moving to the US, and hoping to enrol my 4 year old son for etiplersen phase 3 trial. We have an option to move to any city o…

Started by Rahul Singh

5 Jul 14, 2014
Reply by Rupjani B

Research Opportunity

Hi, My name is Brenna and I am a genetic counseling student at the University of Oklahoma. As part of my degree I am completing a research…

Started by Brenna Mellicker

0 Dec 16, 2013

Staff

If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be?

If you had a chance to ask researchers, providers or industry any question at all about clinical trials, what would it be? PPMD’s 2012 Co…

Started by Kathi Kinnett

25 Oct 18, 2013
Reply by Tina Tsonis

Cardiomyopathy/Heart Failure - Left Ventricular Assist Devices

Hello Everyone, I am a female with Duchenne MD I will be 24 years old in August. My heart took a turn for the worse in Jan. 2013 and I had…

Started by Susana Arroyo

0 Jun 9, 2013

For DMD parents by Dr Rhodes about STS Treatment

I thought everyone would like to check out what Dr. Rhodes has to say as he talks about some of the misconceptions of STS treatment... http…

Started by Misty VanderWeele

1 Mar 3, 2011
Reply by pop jarvis

Saving Our Son's...one story at a time!

If you are a family affected with DMD and would like to be part of the DMD movement and bring Awareness up front, we are looking for 10 mor…

Started by Dee

0 Nov 23, 2010

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