Tamara Walters's Discussions (54)

Discussions Replied To (41) Replies Latest Activity

"I have posted that I have not seen a great improvement with Ataluren, not with inten…"

Tamara Walters replied Dec 8, 2011 to Ataluren update

18 Dec 14, 2011
Reply by Michelle Scaglione

"We also do the Fri and Sat larger doses and it seems to work well. His vertical grow…"

Tamara Walters replied Dec 5, 2011 to steroid dosing every three days?

14 Nov 9, 2013
Reply by Janine

"I felt the same way when my son was that age, about protecting him from the knowledg…"

Tamara Walters replied Dec 5, 2011 to Mobility Devices

6 Dec 5, 2011
Reply by Tamara Walters

"I know this is an old post. We ended up getting the Bruno Turny Chair for a minivan…"

Tamara Walters replied Dec 5, 2011 to Purchasing a New Vehicle ?

17 Dec 5, 2011
Reply by Tamara Walters

"My son is in the trial and we are on a "safety study until approval" is what I have…"

Tamara Walters replied Dec 5, 2011 to Ataluren update

18 Dec 14, 2011
Reply by Michelle Scaglione

"I know it is hard when they start asking questions. I dreaded the day he knew the wo…"

Tamara Walters replied Mar 2, 2011 to He asked me.... and I froze.. And dealing with sibling anger.

5 Mar 3, 2011
Reply by Donna

"Night splints made a huge difference for our son, even better than stretching with a…"

Tamara Walters replied Feb 9, 2011 to Achilles tendon start?

11 Jul 27, 2011
Reply by Jennifer

"Anyone know why Cincy is not coming back on board ? I know Dr. Wong presented some o…"

Tamara Walters replied Feb 9, 2011 to Ataluren

18 May 13, 2011
Reply by Angela Bourgeois

"Just got a call. St. Louis is starting back up the week of February 21st."

Tamara Walters replied Feb 9, 2011 to Ataluren

18 May 13, 2011
Reply by Angela Bourgeois

"We were in the clinical trials and we are waiting to go back on the drug. Anyone els…"

Tamara Walters replied Feb 3, 2011 to Ataluren

18 May 13, 2011
Reply by Angela Bourgeois

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