Susan Rathfelder's Discussions (191)

Discussions Replied To (177) Replies Latest Activity

"If you haven't done so yet register your son on the Duchenne Connect patient registr…"

Susan Rathfelder replied Apr 16, 2011 to Athena test came back negative, biopsy confirmed DMD

9 Apr 20, 2011
Reply by Paul Cliff

"Jonathan did have a muscle biopsy which showed no dystrophin in the sample tested. A…"

Susan Rathfelder replied Apr 14, 2011 to Athena test came back negative, biopsy confirmed DMD

9 Apr 20, 2011
Reply by Paul Cliff

"Luis, It means that they weren't able to identify your son's particular mutation/del…"

Susan Rathfelder replied Apr 14, 2011 to Athena test came back negative, biopsy confirmed DMD

9 Apr 20, 2011
Reply by Paul Cliff

"HI Tracy, My son has had his Q600 for about 2 years and the only problem we have had…"

Susan Rathfelder replied Apr 12, 2011 to Problems with Quantum Electric Wheelchair

2 Jun 2, 2011
Reply by David

"He is actually doing really well. His Pulmonary function is still normal and he just…"

Susan Rathfelder replied Mar 14, 2011 to What are non exon skipping/PTC parents following for research?

7 Mar 16, 2011
Reply by Karen

"We don't even know our sons mutation and to be quite honest I have enough on my  han…"

Susan Rathfelder replied Mar 13, 2011 to What are non exon skipping/PTC parents following for research?

7 Mar 16, 2011
Reply by Karen

"This is from Web MD http://diabetes.webmd.com/blood-glucose?page=3  "

Susan Rathfelder replied Mar 3, 2011 to What is the blood sugar number we need to watch for?

3 Mar 7, 2011
Reply by Liisa Underwood

"DMD does make things faster, but you still have to fill out all the paperwork. You d…"

Susan Rathfelder replied Jan 27, 2011 to Medicaid Waiver and also SSI eligibility

1 Jan 27, 2011
Reply by Susan Rathfelder

"Jennifer,   The date on it is 1996 with a revision date of 1997. I haven't signed up…"

Susan Rathfelder replied Jan 25, 2011 to Physical Therapy Book

7 Apr 7, 2012
Reply by Claire Diemler

"No experience with surgery, but my son did go through several rounds of serial casti…"

Susan Rathfelder replied Dec 12, 2010 to heel cord surgery

2 Dec 12, 2010
Reply by Vicky Singh

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