Clare Harper's Discussions (40)

Discussions Replied To (40) Replies Latest Activity

"David ,i think as parents we all feel like that .Days i am so optimistic and days wh…"

Clare Harper replied Jul 21, 2011 to Conference outcomes

16 Jul 26, 2011
Reply by Ofelia Marin

"No mention /update for Ataluren extension trial neither.."

Clare Harper replied Jul 21, 2011 to Conference outcomes

16 Jul 26, 2011
Reply by Ofelia Marin

"i have been using idebenone for a while now ,it is good!! i find it helps with Lewis…"

Clare Harper replied Jul 20, 2011 to IDEBENONE

193 Feb 5, 2012
Reply by Moein

"not sure what age your little guy is but i did all that and in the end i asked my bo…"

Clare Harper replied Jul 18, 2011 to Suggestions for giving deflazacort

19 Sep 26, 2011
Reply by Susan Patterson

"good spot Greg,hopefully another potential route to end Duchenne!"

Clare Harper replied Jul 6, 2011 to Bone marrow transplantation in a patient with DMD

1 Jul 6, 2011
Reply by Clare Harper

"Hi any one know how the extended trial is going for Ataluren??:"

Clare Harper replied Jun 13, 2011 to ATALUREN - confused about the information given from PTC Therapeutics and Genzyme

51 Jun 12, 2012
Reply by Tamara Walters

"any updates with regard funding for the trial?"

Clare Harper replied Jun 10, 2011 to What can we do NOW to get next trials for SMT C1100 (utrophin upgregulator) in the US in the future?

59 Sep 9, 2011
Reply by David

"best of luck !!!! Keep us all posted!!"

Clare Harper replied Jun 9, 2011 to Exon 51 skip (GSK2402968) in ambulant boys Canada

56 Jun 22, 2016
Reply by Dori

"we just need to  get the funding,well i have my fundraising hat on!!! thanks Jon"

Clare Harper replied May 18, 2011 to What can we do NOW to get next trials for SMT C1100 (utrophin upgregulator) in the US in the future?

59 Sep 9, 2011
Reply by David

"Hi Ofir ,i would be very interested to hear the outcome,,have you noticed any benefi…"

Clare Harper replied May 17, 2011 to aminogram

5 May 8, 2012
Reply by Tammy

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