Clare Harper's Discussions (40)

Discussions Replied To (40) Replies Latest Activity

"@Amit,Lewis will be 6 in November.To add into this discussion Lewis got a full asses…"

Clare Harper replied Aug 30, 2011 to IDEBENONE

193 Feb 5, 2012
Reply by Moein

"Hi David,my doctor is not involved with the idebenone regime,it is not available her…"

Clare Harper replied Aug 25, 2011 to IDEBENONE

193 Feb 5, 2012
Reply by Moein

"yeah!!! great stuff !!!  "

Clare Harper replied Aug 24, 2011 to Has anyone noticed less balance and constant falls after starting deflazacort?

12 Sep 4, 2011
Reply by Joshua's mom

"i agree with Joy, Lewis only started about 6 weeks ago on 18 mg deflazacort and he w…"

Clare Harper replied Aug 24, 2011 to Has anyone noticed less balance and constant falls after starting deflazacort?

12 Sep 4, 2011
Reply by Joshua's mom

"Hi Wainina ,you will find good help on this site as all experiences are shared and y…"

Clare Harper replied Aug 17, 2011 to IDEBENONE

193 Feb 5, 2012
Reply by Moein

"http://www.idebenone.net/ Wainana read this.It is a lot more powerful tha COQ10.I li…"

Clare Harper replied Aug 17, 2011 to IDEBENONE

193 Feb 5, 2012
Reply by Moein

"hi all ,my son also has been on idebenone ,150 mg twice a day,prior to starting ster…"

Clare Harper replied Aug 15, 2011 to IDEBENONE

193 Feb 5, 2012
Reply by Moein

"@Cheri,so how is your son doing on the extended trial???  "

Clare Harper replied Aug 8, 2011 to ATALUREN - confused about the information given from PTC Therapeutics and Genzyme

51 Jun 12, 2012
Reply by Tamara Walters

"do you give them before or after breakfast?My doctor has also prescribed Omezaprale…"

Clare Harper replied Jul 27, 2011 to Giving Steriods

6 Jul 27, 2011
Reply by Clare Harper

"i guess you have to decide if you want the alternative of not having particpated,and…"

Clare Harper replied Jul 26, 2011 to GSK vs AviBiopharma

3 Jul 26, 2011
Reply by Ofelia Marin

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