JUAN PEDRO ARBULU's Discussions (107)

Discussions Replied To (99) Replies Latest Activity

"I agree that someone from PPMD should follow our discussions, sharon Herstlee did so…"

JUAN PEDRO ARBULU replied Sep 22, 2011 to Heart Failure Drugs Preserve Muscle in Muscular Dystrophy

55 Apr 1, 2012
Reply by Peter

"Yes David hopefully it will help our sons through until someone cures them definatel…"

JUAN PEDRO ARBULU replied Sep 22, 2011 to Heart Failure Drugs Preserve Muscle in Muscular Dystrophy

55 Apr 1, 2012
Reply by Peter

"Andrea the best for you and your son,prayers with all you families on this trial!"

JUAN PEDRO ARBULU replied Sep 19, 2011 to Exon 51 skip (GSK2402968) in ambulant boys Canada

56 Jun 22, 2016
Reply by Dori

"thanks a lot Clare!!!"

JUAN PEDRO ARBULU replied Sep 13, 2011 to IDEBENONE

193 Feb 5, 2012
Reply by Moein

"has anyone experienced stomach aches with Idebenone? what stomach protector do you g…"

JUAN PEDRO ARBULU replied Sep 13, 2011 to IDEBENONE

193 Feb 5, 2012
Reply by Moein

"great!!"

JUAN PEDRO ARBULU replied Aug 25, 2011 to IDEBENONE

193 Feb 5, 2012
Reply by Moein

"thank you Clare, I am starting 300mg of idebenone next week too!"

JUAN PEDRO ARBULU replied Aug 24, 2011 to Has anyone noticed less balance and constant falls after starting deflazacort?

12 Sep 4, 2011
Reply by Joshua's mom

"great info Joy, the same happened to us overnight, so I will keep your advice in cas…"

JUAN PEDRO ARBULU replied Aug 24, 2011 to Has anyone noticed less balance and constant falls after starting deflazacort?

12 Sep 4, 2011
Reply by Joshua's mom

"good Veronica my son is better too..lets keep the side effects at minimum."

JUAN PEDRO ARBULU replied Aug 24, 2011 to Has anyone noticed less balance and constant falls after starting deflazacort?

12 Sep 4, 2011
Reply by Joshua's mom

"Thanks a lot  Cheri, he is more active and I will check u¡onthe regime you use for w…"

JUAN PEDRO ARBULU replied Aug 24, 2011 to Has anyone noticed less balance and constant falls after starting deflazacort?

12 Sep 4, 2011
Reply by Joshua's mom

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