John R Henderson's Discussions (18)

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Discussions Replied To (18) Replies Latest Activity

"It'a available from Walgreens in a variety of pill strengths. We use one quarter of…"

John R Henderson replied Jun 30, 2010 to Deflazacort thirst and sleep?

 13 Oct 26, 2010
Reply by Joshua's mom

"We haven't seen the thirst issue, but yes - definitely our son sleeps less. Typicall…"

John R Henderson replied Jun 30, 2010 to Deflazacort thirst and sleep?

 13 Oct 26, 2010
Reply by Joshua's mom

"Hi Katerina, My son is on Deflazacort at 0.9mg per kg body weight; he is 17 kgs and…"

John R Henderson replied Jun 28, 2010 to Why is Deflazacort best choice?

 18 Jan 6, 2016
Reply by EMIR SULEJMANOVIC

"Hi Darcy, The guidance I have been given is 0.9mg per kg bodyweight. My son is 5, w…"

John R Henderson replied Jun 11, 2010 to Steroids

 3 Jun 14, 2010
Reply by sam johnson

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John R Henderson replied May 12, 2010 to has anyone tried Idebenone and experienced good results??

 16 Feb 16, 2011
Reply by JUAN PEDRO ARBULU

"Hi, Just for info. my 5 year old - based in the U.K. - is also on Deflazacort; the…"

John R Henderson replied May 7, 2010 to Shire Brand Calcort/Deflazacort

 2 May 7, 2010
Reply by John R Henderson

"Excellent - and thank you for such a prompt response Naomi ! I'll order it as soon a…"

John R Henderson replied Mar 22, 2010 to has anyone tried Idebenone and experienced good results??

 16 Feb 16, 2011
Reply by JUAN PEDRO ARBULU

"Hi, Can you tell me which manufacturer / outlet / brand of Idebenone you use ? I ca…"

John R Henderson replied Mar 22, 2010 to has anyone tried Idebenone and experienced good results??

 16 Feb 16, 2011
Reply by JUAN PEDRO ARBULU

"Hi, I think the "corticosteroid equivalence" listed in most of the literature compa…"

John R Henderson replied Feb 20, 2010 to Switching from Prednisone to Deflazacort

 8 Feb 21, 2010
Reply by Liisa Underwood

"Hi Karen, On this side of the pond - Deflazacort is also not routinely available, b…"

John R Henderson replied Feb 11, 2010 to Why is Deflazacort best choice?

 18 Jan 6, 2016
Reply by EMIR SULEJMANOVIC

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