Perlita & Gordy Hains's Discussions (13)

Discussions Replied To (8) Replies Latest Activity

"ABSOLUTELY -  we built an accesible home last yr and we put in a roll in shower.  Ou…"

Perlita & Gordy Hains replied Mar 6, 2013 to Bathroom Modifications - Do I really want/need a roll-in shower?

11 Jun 24, 2013
Reply by Matt Wallace

Staff

"Joanna- I'm beyond sad - we were banking on PTC124 for Levi... My hubby was home sic…"

Perlita & Gordy Hains replied Mar 3, 2010 to Ataluren Results Announced

58 Mar 12, 2010
Reply by Marks33

"Brian - I was late in registering for the 5K on Friday, my older boys want to run. T…"

Perlita & Gordy Hains replied Nov 23, 2009 to Disney World Marathon

3 Nov 24, 2009
Reply by Brian Denger

"My lil man, Levi does not have deletion but I can relate as we are fairly new to Dx.…"

Perlita & Gordy Hains replied Nov 23, 2009 to Anyone help me?

22 May 15, 2010
Reply by Alejandra Lagffer

"HI Brian - we are there :) I need to talk w/ Missy soon. I have many ? about 5K on F…"

Perlita & Gordy Hains replied Oct 21, 2009 to Disney World Marathon

3 Nov 24, 2009
Reply by Brian Denger

"My son Levi just started & LOVES it. He does not have cognitive issues but some…"

Perlita & Gordy Hains replied Jul 14, 2009 to Hippotherapy?

28 Jul 15, 2009
Reply by Lyndsey Manderfield

"I was at PPMD Conference in Atlanta & PTC Therapeutics has a Myostatin drug in t…"

Perlita & Gordy Hains replied Jul 4, 2009 to Strongest Toddler

16 Jul 8, 2009
Reply by R Patel

"IT was amazing... I was watching whil;e on the phone w/ another DMD mom - we were bo…"

Perlita & Gordy Hains replied Jun 11, 2009 to Strongest Toddler

16 Jul 8, 2009
Reply by R Patel

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