Trinh Nguyen's Discussions (110)

Discussions Replied To (90) Replies Latest Activity

"Dear Blazena, Do you know current research for this mutation ? Tks, Trinh "

Trinh Nguyen replied Jul 31, 2011 to Stop Codon Mutation

26 Sep 10, 2011
Reply by Bernardo A. Iriberri

"So, the dose is a little bit under standard (0.90mg/kg/day). Same as my son's dose (…"

Trinh Nguyen replied Jun 27, 2011 to Starting steroid

20 Jun 27, 2011
Reply by Trinh Nguyen

"Dear Andrew, How is Hayden's weight ? Tks, Trinh"

Trinh Nguyen replied Jun 27, 2011 to Starting steroid

20 Jun 27, 2011
Reply by Trinh Nguyen

"Thanks for yr reply. So, CPK changes probably does not related to steroid. One more…"

Trinh Nguyen replied Jun 23, 2011 to Starting steroid

20 Jun 27, 2011
Reply by Trinh Nguyen

"Dear Dolf, So sad whenever I hear of more Duchenne boy. I have just joined the commu…"

Trinh Nguyen replied Jun 21, 2011 to Starting steroid

20 Jun 27, 2011
Reply by Trinh Nguyen

"Dear Andrea, Yes, my son is getting Prenisolone everyday since doctors said he got t…"

Trinh Nguyen replied Jun 8, 2011 to DNA test

3 Jun 8, 2011
Reply by Cathy Johnson

"Dear Jessica, Yes, I heard so. But in my country, only prenisolone is available. I a…"

Trinh Nguyen replied May 19, 2011 to Starting steroid

20 Jun 27, 2011
Reply by Trinh Nguyen

"Hi Moein, Much thanks for yr reply. Yes, I heard many parents said so. But Deflazaco…"

Trinh Nguyen replied Apr 22, 2011 to Starting steroid

20 Jun 27, 2011
Reply by Trinh Nguyen

"Dear Damien, Much thanks. My son is 6 and a half. Yes, current dose is quite low. So…"

Trinh Nguyen replied Apr 22, 2011 to Starting steroid

20 Jun 27, 2011
Reply by Trinh Nguyen

"Dear Theresa and Rob, Our boy was diagnosed with DMD just in one month ago. We have…"

Trinh Nguyen replied Mar 21, 2011 to My son about to start steroid treatment

10 Mar 21, 2011
Reply by Trinh Nguyen

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