Christine Piacentino's Discussions (60)

Discussions Replied To (35) Replies Latest Activity

"Hi Sharon, I live in Rochester, NY.  I had one family here whose son was also bedrid…"

Christine Piacentino replied Sep 13, 2014 to NURSING CARE

3 Oct 13, 2014
Reply by Sharon Wood

"If your son is on prednisone or deflazacort, how long have has he been taking it?  K…"

Christine Piacentino replied May 25, 2012 to weight control

4 May 25, 2012
Reply by Tang Thao

"I wanted to share this link.  This vehicle comes already modified off the line, with…"

Christine Piacentino replied May 25, 2012 to Best way to shop for Handicap Van

11 Aug 10, 2015
Reply by Maria Lescot

"The trials are are still going on.  They are open label safety trials.  The drug is…"

Christine Piacentino replied May 12, 2012 to Ataluren can be bought NOT FOR HUMAN OR VETERINARY DIAGNOSTIC OR THERAPEUTIC USE.

4 May 15, 2012
Reply by Mindy

"Hi Katherine,  Yes, we are well and Jonathan is enjoying college.  He is struggling…"

Christine Piacentino replied Dec 3, 2011 to Getting Elevation Approved on a power wheelchair

7 Dec 5, 2011
Reply by Janine

"Thanks Michelle, these are great ideas to include in his justification letter.  I ap…"

Christine Piacentino replied Dec 3, 2011 to Getting Elevation Approved on a power wheelchair

7 Dec 5, 2011
Reply by Janine

"Thank you Jennifer, your insight is very helpful.  We are pretty good at fighting fo…"

Christine Piacentino replied Dec 3, 2011 to Getting Elevation Approved on a power wheelchair

7 Dec 5, 2011
Reply by Janine

"Chiming her.  My son is 17 with Duchenne and just completed his eagle scout project.…"

Christine Piacentino replied Jan 19, 2011 to Cub Scouts

5 Jan 19, 2011
Reply by Christine Piacentino

"Yes, you can asked the person making them to drill holes in them all over. This help…"

Christine Piacentino replied Aug 15, 2010 to AFO's

7 Aug 16, 2010
Reply by Wyatt's Mommy, Melissa

"I know that Pat Furlong is attending the meeting in Naples. PTC will post the summar…"

Christine Piacentino replied Jul 21, 2010 to ataluren what are they doing?

11 Aug 10, 2010
Reply by ferre

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