Julie Hathaway's Discussions (18)

Search Discussions

View

Discussions Replied To (17) Replies Latest Activity

"My son has a deletion of 51 and needs exon 50 skipped. Will this upcoming study in M…"

Julie Hathaway replied Dec 6, 2009 to EXON SKIPPING - TRIALS STARTING IN MARCH OF 2010

 58 Dec 18, 2009
Reply by JUAN PEDRO ARBULU

"Thanks, everyone. You all have made my decision easier. Our school is giving the vac…"

Julie Hathaway replied Nov 8, 2009 to H1N1 Issues?

 21 Nov 10, 2009
Reply by Susan Rathfelder

"Does anyone know how I can get information on Charley's fund? Maybe a phone number o…"

Julie Hathaway replied Jul 1, 2009 to AVI - skipping 51

 84 Aug 30, 2009
Reply by Ofelia Marin

"My son will be 7 in July. He has a deletion on exon 51. I don't think he would benef…"

Julie Hathaway replied Jul 1, 2009 to AVI - skipping 51

 84 Aug 30, 2009
Reply by Ofelia Marin

"Amen! This will hopefully be up for discussion at the conference in June. "

Julie Hathaway replied May 31, 2009 to TAT-utrophin-based protein as a viable therapy for the treatment of muscular dystrophy

 2 May 31, 2009
Reply by Julie Hathaway

"We have also noticed hair growth on Brandon's back and on his pubic area? He is 6 ye…"

Julie Hathaway replied May 31, 2009 to Deflazacort side effect

 16 Jun 14, 2009
Reply by Erin

"What is Idebenone? We are only 4 months into Brandon's diagnosis and we're learning…"

Julie Hathaway replied Mar 4, 2009 to IDEBENONE

 193 Feb 5, 2012
Reply by Moein

"Please let us know what you find out. Does anyone know if Dr. Wong has heard of this…"

Julie Hathaway replied Mar 4, 2009 to stem cell treatments on the internet

 22 Apr 23, 2009
Reply by Kulwant Pannu

"Angela, My heart is breaking for you and your family. I dread that moment. My son i…"

Julie Hathaway replied Feb 23, 2009 to Dealing with son's sadness about being different

 30 Nov 25, 2009
Reply by Donna Gluck

"Brandon wears stockinets (socks with the toes out) and/or diabetic socks. We also ha…"

Julie Hathaway replied Feb 22, 2009 to Sock suggestions for night splints

 27 Sep 2, 2009
Reply by Mary Helen Smith

RSS

Need help using this community site? Visit Ning's Help Page.

Members

Events

Terms of Service

© 2021   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service